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coachandtrunk
coachandtrunk
Updated 13 hours ago
coachandtrunk
coachandtrunk
Updated 13 hours ago

Living With Lupus SLE💜You Never Know How Strong You Are, Until You Have To Be

LUPUS AWARENESS MONTH

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🩺💜🩺LUPUS is a invisible disease. There is still so much that is not known about this invisible debilitating disease. Unfortunately Lupus Research is underfunded. 💊There are treatments, NOT CURES, that may provide some measure of relief. Often the treatments are medications intended to be used for other disease's. Some come with their own potentially harmful side effects. 💊Plaquenil is 1 such drug. Long term treatment with Plaquenil can lead to blindness. Bi-annual comprehensive eye exams are mandatory, when taking Plaquenil, to detect early on set vision loss in hopes of preventing total blindness. 🐺🦋The word ‘lupus’ (Latin for ‘wolf’) is attributed to the thirteenth century physician Rogerius who used it to describe erosive facial lesions that were reminiscent of a wolf's bite or a butterfly shaped discoloration across the nose and cheeks. If someone you know, or if you have been diagnosed with Lupus, https://www.lupus.org/ has wonderful information. 💜MAY IS LUPUS AWARENESS MONTH, YOU CAN HELP💜WEAR PURPLE 2 SHOW SUPPORT💜
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16 Comments
mmdbt
mmdbt My mom has Lupus. I think it’s awesome you posted this.
May 01Reply
coachandtrunk
coachandtrunk @mmdbt Misty, I'm sorry to hear your mom has Lupus. Sending positive thoughts and prayer her way. 💜
May 02Reply
nay707
nay707 Sending positive vibes an energy to All my lupus Warriors out there! 💜🦋
May 16Reply
kaleidoscope9
kaleidoscope9 My sweet friend 🦋 I love that you bring awareness to your plight with Lupus. I just learned something today that I didn’t know about lupus. I haven’t been feeling too well lately & that’s the reason for my MIA! I am always thinking of you & praying things get better.keep on keeping on chickie! 🌺🌸🌺
May 15Reply
felreg12
felreg12 Love this💜💜💜💜
May 18Reply
coachandtrunk
coachandtrunk @kaleidoscope9 Love you sweet lady! I hope you're feeling better. I do worry about you and keep you in my thoughts and prayers too. You are a rock star in my book! 💗💗💗
May 23Reply
coachandtrunk
coachandtrunk @felreg12 Thank you PFF.💜🪷💜🪷💜
May 23Reply
kaleidoscope9
kaleidoscope9 @coachandtrunk love you sweet friend! Story: I went to my PCP to get referral for testing. I walked in with a 😷 on. She yelled Ohhh take off the 😷 there’s no one here. I replied, excuse me! I said I wear a mask everywhere I go because after contacting Covid & was in bed 30 days. She said: you need to take”horse” medicine. I take it once a month & haven’t had Covid yet! I wanted to ask is she eats Hay, too!
May 24Reply
musharina
musharina Me too…. And just went for my eye exam two days ago 😌💗💐💗
Apr 13Reply
coachandtrunk
coachandtrunk @musharina I'm so sorry you have Lupus. You'll always have a person/place to chat or vent if you'd like, here or bundle message me if you'd like. I know trying the disease is and some times non-Lupies just don't fully understand what you're feeling. The "special" eye exams drive me crazy, not to mention spending almost 4 hours at the ophthalmologist with my pupils dilated pretty much the whole time. 💜🪻🌷🪻🥰
Apr 15Reply
coachandtrunk
coachandtrunk @musharina Whoops, "should be I know how trying the disease is....."
Apr 15Reply
whitneyleigh303
whitneyleigh303 mahalo for sharing this. i just had to retire at 41 from doing hair and make up. i just started selling on poshmark to try and supplement my income. sending love and aloha and healing to everyone. 💜🤙🏼💜🤙🏼💜🤙🏼
3 days agoReply
whitneyleigh303
whitneyleigh303 also i definitely already stole these pictures lol but is it okay to repost this? i’m not sure of the etiquette on here. ALSOOOO i can’t tell you how much my heart swelled seeing comments down here. i don’t have any friends with lupus. it’s a small town and we have no drs (i fly to oahu for my rheumatologist) plus we live on an island which isn’t great for my photosensitivity. i tell ppl “im allergic to the sun” lol 😂
3 days agoReply
coachandtrunk
coachandtrunk @whitneyleigh303 STEAL AWAY! I'm always sorry to met a new friend because we have Lupus in common, instead of something meeting because of something fun like Jon Bon Jovi, chocolate, puppies & kittens. But I am glad you found this and me. I don't have any RLF's with Lupus either. If you ever want to vent about how much Lupus sucks or feeling down, please send me a message either here or in a bundle, Shay 💜
3 days agoReply
2chicboutique
2chicboutique God bless you babe. Sending all the love your way💜💜💜💜You are a warrior ❌❤️
2 days agoReply

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Last Active: May 31

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