Updated- THANK YOU Supportive/Caring POSHERS!

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I got sick in ‘06 @22 yrs old w/pancreatitis out of nowhere. My main illnesses are Gastroparesis, POTS/dysautonomia), (MCAS) a Mast Cell/autoimmune disease causing allergic reactions & anaphylaxis, and since my total colectomy I’ve needed a port for almost daily IV hydration for chronic dehydration. I also have a implant for abdominal pain. THANK YOU FOR YOUR SUPPORT & COMMENTS!!!! This is a great/informative link on Gastroparesis: Www.gnewithgp.com/2013/07/03/Gastroparesis-in-a-nut-shell/

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213 Comments

lisadraper I am so sorry to hear this sweetheart...it must be terrible!! I am praying for you!!!

Jun 08Reply

shoret411 @lisadraper thank you!

Jun 08Reply

tammysbeachwear @randeescloset

Jun 08Reply

tammysbeachwear So sorry for what you're going through.

Jun 08Reply

shoret411 Thank you @tammysbeachwear, at least Posh is giving me something to do and people to talk to :)

Jun 09Reply

lovecolor7 So sorry for what you're going through. And the constant pain and it never going away are really difficult things to contend with. It changes your personality almost . I have a host of other things going on so I relate to the chronic pain and the terror of knowing it's not going away. It's tough. I know saying hang in there is annoying so I won't say that to you. But thank you for sharing . It was brave of you and you are probably helping others without even knowing it. Glad to meet you 💜

Jun 09Reply

shoret411 @lovecolor7 Thank you so much!! I've been dealing w/all this since 2006, right after graduating college, so it's def been a battle and never really got to begin my life... i thought the first few surgeries would fix everything and had hope, but now i'm on morphine 24/7 and GI Dr is wanting to insert feeding tube and it's just getting bad... I dated a guy for 6 years and had 1 relationship for a year but now it's like, how will i ever find a husband or something to date and all my friends are married and having babies and i'm living off my parents and it's just awful and depressing :( Never pictured my life like this. Your health is your biggest blessing!!!

Jun 09Reply

lovecolor7 I just wrote a long message and it disappeared! I can't believe you have to have a feeding tube, is there any alternative at all? If you ever need drs in NYC you can stay with me. I know how expensive it is. I also understand on the marriage and children . I finished grad school at the univ I wanted and then went to surgery and have never worked a day. Just struggling and feeling like a failure for being sick . I know it's weird but angry at myself for not being able to push through it. I can't cope anymore . I feel like a crazy person. The pain is terrible . Being active people to just mounds of pain really sucks . It really does. What else can they offer you? Anything at all? I'm sure you've tried everything at least twice but is there anyone out there that can help?

Jun 09Reply

lovecolor7 I'm glad you have your family . I know you would rather be our of there living your life but it gives you a safe place, don't feel bad about it. And the cost for all this is obscene, my crappy insurance doesn't even begin to cover it, I can only see the worse drs so I have to pay out of pocket to see someone with a brain . Maybe we need to move to Cuba or Germany to get our health back. Nothing matters more than your health and being so desperate to get it back and not accomplishing it is something I have trouble accepting . I think if I just try harder but I'm just kidding myself . Not sure what's the meaning of any of this . I've had se really bad thoughts . I just don't see the point in being all sickly , in pain and watching life go by. If I was my bf I would leave . I'm Not any fun. To stand and wash the dishes is like a big deal, I'm sure he feels like he is living with his great grandmother , lol! I want to not feel pain for a day. Just a day, a breather . I can't tolerate it anymore !!!

Jun 09Reply

shoret411 @lovecolor7 My parents are against feeding tube.. i think they're in denial.. so i'm not sure what's going to happen. I"m meeting a Concierge/Boutique Dr tomorrow and they're coming w/me. I went to The Mayo Clinic almost a year and a half ago and was worthless, going to try looking into The Cleveland Clinic now... i have a lot of other issues also and it just piles up and every dr wants to blame something or work on 1 thing but i'm just not getting better. I've done acupuncture, every kind of diet, chiropractors, etc. Been off pain meds, on pain meds.. my colon doesn't function and tried everything possible for that but it can work so i don't need it removed but nobody can figure out why it's not working.. it's just endless and my parents are so sick of dealing w/it and i'm just so alone. I have a great support group on FB and met one of the girls i talk to when i went to Mayo in MN which was pretty cool, but haven't found anyone closeby. Thanks for the offer about NY!! What causes all of your pain?

Jun 09Reply

shoret411 @lovecolor7 i completely understand! I always say i'm like an 80 yr old, or prob more like 90 these last few weeks! i've hardly been able to even shower.. and i have to nap after i do! I had pancreatitis after college so i couldn't drink and that was hard at first.. now i'd be happy to be able to go out and drink a diet coke at the bar!! I started seeing a therapist who specializes in chronic pain and terminal illness. I was against it for so long but i've had a lot of issues w/coping and been hospitalized a few times for trying to end my life, and it's all b/c of this.. even my dr's tell me they don't blame me!

Jun 09Reply

lovecolor7 That's a very heavy load you're carrying . A for the feeding tube, I think you will ultimately have to make the decision . It's scary I'm sure. It's so frustrating that they can't give you more concrete diagnosis. I am sick of acupuncture . They act so serious but at this point I think they are delusional people. I only went because I was desperate but well, at the end they have these riveting conclusions like "you need to See a dr." Really?

Jun 09Reply

lovecolor7 As for me is musculoskeletal issues. Just falling apart. Horrible back problrms , hip, groin, hamstring, glutes, shoulder, neck etc. I've had a ton of steroids which sometimes help for a short time. I've tried everything under the sun. I'm now seeing a chiropractor because I'm Desperate . It's $360 the first visit then $250 thereafter . That's NYC for you. But they have th best orthopedic hospital in the country so I stay here. The quality of life becomes so low and hopelessness sets in all The while you know you're raving a clock to "start your life" so it's horrible . Did they give you any prognosis? Can this improve in time? I just refuse to believe they can't help . I must sound like your parents now , in denial . But you're so young . I think compounded issues is what makes it so tough to unravel. If things go on too long, it causes other problems which then take on a life of their own and then the next problem is introduced. I wish I had a magic wand to heal us . Everyone for that matter. I guess being young makes it difficult in another way because the self expectations are high. I know what you mean, I just don't even care to go out anymore . I don't enjoy it. I'm literally home for days at a time. If I emerge people say "I thought you moved" because I just can't be out. So morbid all of it. I wish our brains functioned at least so we can read! The medication kind of messes that up. So are you going to the Cleveland clinic? Is there a particular specialist you are going to see ? The digestive system is far more complicated than they once thought. I know it's not a god and you're so limited in what you can eat but have you heard of the "abascal way"? It's just a version of the anti-inflammatory diet. Not sure if you can even eat that much fruits and vegetables but if it brings down inflammation even a little , maybe it can ease just a little suffering . Do you plan to keep seeking treatment ? What do your parents suggest?

Jun 09Reply

shoret411 @lovecolor7 I just started thinking about CC, still have to look into insurance and everything... I think w/Mayo it took 3 months to get my appt once i got accepted (it's like college lol- have to send records and either get accepted or denied) One of my old Dr's works at that hospital in NY!! He was my primary physician but his specialty was orthopedics (he'd sneak me into his clinic sometimes) Heard of Dr Kinderknecht? Look him up if not! I'm about to get to sleep, have a good night!

Jun 09Reply

lovecolor7 That is really cool you are in touch with the girl you met at Mayo. I'm also glad you're seeing a therapist . I am too but if I really express myself they will lock me up in a nut house. I looked into dr assisted ... And they basically told me I don't qualify because I have more than 6 months to live but make a will and off myself . There seems to be very little healthcare out there. It's a mess here. And I'm sure others have it worse than us. At least we have the savvy to work our way through the drs visits and questions and procedures etc.

Jun 09Reply

lovecolor7 I know hospital for special surgery has applications too especially with the top providers. I hope you get in and the insurance helps . Keep us posted . I havnt heard of him but he sounds nice and I like his name! Ok, rest well. Hope posh helps to distract you a little . Talk later 💜 sleep well

Jun 09Reply

desidooo @shoret411 I'm so sorry for your pain. Thank you for sharing your story.

Jun 10Reply

abstractdreams Chronic invisible illness is a difficult & painful road. But you're not alone hon. Many, including myself suffer daily from unseen, painful chronic illness. I have a Fibro Girl listing, stop by if you feel like it & add your thoughts.👍💋

Jun 11Reply

miami_wife im sorry to hear that hun, wish i could help at least with advice, but ill def remember u in my prayers <3

Jun 11Reply

shoret411 @vanadzor Thank you! I need those too!

Jun 11Reply

miami_wife :)

Jun 11Reply

rdomal @shoret411 Renee, I am so sorry to hear of your illness. My prays & thoughts will be with you. God Bless You!!!!!

Jun 11Reply

0verdr3ss3d Haven't seen you on here in a day or two just checking on you

Jun 12Reply

shoret411 @0verdr3ss3d aww thank you!! I've been busy w/Dr appts and it's taken all my energy. Yesterday i went to my cousin's dance recital and barely stayed awake, parents dropped me off at 10 p.m. and i fell right asleep and just woke up today at 3 p.m.! Haven't been on here for a long time so i have lots of catching up to do, thanks soo much for noticing and ur message! Most of my "friends" don't even notice that i've been "MIA" - so it means a lot!

Jun 12Reply

0verdr3ss3d @shoret411 you are so welcome. I notice when I haven't seen one of my posh sisters. Well you probably need that extended nap😊. Take care of yourself and be proactive. I'm here if you ever need to talk. My phone is in my hand 25/8😩😩😩terrible

Jun 12Reply

shoret411 @0verdr3ss3d Monday evening my parents and I met with this amazing Concierge Dr who I hired as my new primary... she costs $1000/yr (goes up to $1800 once you're 35) she doesn't take insurance, but i get 24/7 access to her... cell phone, email, same day appts, etc. She only takes 500 patients instead of thousands, and she's going to case manage my care w/my other Dr's, so this is a good start! She looked at my meds list and said it's a "death sentence" and at my age i won't live and no wonder i'm sleeping so much! I have my first real appt w/her on Monday, already did blood work for her, so it's giving me some new hope!

Jun 12Reply

0verdr3ss3d @shoret411 Yay that's great news and you sound so excited!!!!! Continuously pray and I will keep you in mines as well😘😘😘😘😘

Jun 12Reply

shoret411 @0verdr3ss3d Thanks Alexia, you're so sweet! Based off your closet, I think we'd be good friends lol

Jun 12Reply

0verdr3ss3d @shoret411 of course we can be. You are just as sweet. I just know some of what you are going through I literally lived in the hospital with my daughter I know how the constant appointments feel, the 1 and 2 month hospital stays are, and the disappointing reports. So the positive reports are always good to hear. Having ppl to support you is very important

Jun 12Reply

mistielee @shoret411 Renee, thank you for the insight. I have never even heard of this condition. So sorry to hear that you endure this daily. I will be putting you on my prayer list. 🙏 thank you for Poshing with me 💕 😊

Jun 13Reply

corilee21 Amen I live the last post, I have heard it all. Sometimes I just want to scream at people cause they just don't get it!

Jun 13Reply

corilee21 @shoret411 I will say a prayer for you tonite Hun and hope you get some answers/ help! Please if you ever need to vent or talk email me. Reading all your posts like they could of been written by me !

Jun 13Reply

shoret411 @mistielee Thank you sooo much! And thank u for adding me on your recommended Poshers list!! When u posted it- i had gotten on Posh for about 2 mins just to check messages and it helped cheer me up! ;)

Jun 13Reply

shoret411 @corilee21 I have a couple good posts like that on Instagram and there's a lot for "invisable illnesses" I hate the "but you look good!" We need to talk on FB pm or something, i've been sleeping for days. Slept 14 hrs and i'm still tired! I'm meeting a new Dr Monday, already did labs and stuff so she'll have them.. GI said i need feeding tube but she's against it, so i guess labs will tell. Hope you are doing well also! Write me on FB anytime- i get those messages like texts!

Jun 13Reply

corilee21 @shoret411 oh good I hope the new doc can help you !!! I am meeting with a new doctor next month hoping to find more answers . I just always feel like there not looking hard Enuff or they don't know what to look for uggg I have been to so many different doctors in past few years . I keep having more stuff happen like you had mentioned before with the autoimmune stuff I know thre is something else on with me that hasn't been found like u said it can take years for that stuff to show in bloodwork ( ok maybe I read that somewhere or you said that in past message lol I'm tired). and Oh I hear ya I went to bed at 7 last nite and slept tell 9 and I could of slept all day but I have my son ( it's so hard with him when all I want to do is sleep and when I'm in pain I have no patience for a rowdy 4 year old lol ). Im looking into trying to get into mayo clinic can u message Me on FB how you got in or like what you had to do etc. Ok well going to bed but hope to talk more soon . I will talk to ya on on FB .then . Sorry if I'm rambling I'm exhausted lol.. Have good nite Hun :)

Jun 13Reply

kelly32068 @shoret411 OMG my son had this about 7yr's ago for about a yr 😞it took forever for Dr to figure out what was wrong with him. God Bless you and watch over you this is a hard disease on a person's body and life 🙏💗. Also sorry late on sharing I fell asleep last night around 1:30 and I get up at 5 to go to work hahahaa so finishing up 😊🎀

Jun 13Reply

mistielee @shoret411 Sure, Renee!! Your closet is GorGeous!! Your Welcome. Have a great Day!!❤️

Jun 13Reply

emmasaddiction @shoret411 Thank you for making me laugh today but I then saw the posts about your illness. My older brother suffers terribly from Krohn's disease since he was 17. He's now 58 and never leaves the house. The government finally saw fit to give him disability last year. Chronic illness and pain is no way to have to live a life. Take heart because he has a wonderful wife and two sons. Some lucky man will love you for who you are. Right now your concerns are for your health first and foremost. I hope things look better with your new doctor and even though I'm Jewish, we pray too. So big prayers are going out to you from the Bay Area in Northern California. x xooxx Louise Goldman

Jun 19Reply

shoret411 @lagoldy44 I'm Jewish too!!! My pain Dr actually prays with all his patients and I told him i'm Jewish the first time but that it's still ok (thinking maybe he'd take out Jesus references) I think it's sooo sweet! There are so many people fighting w/the government about digestive illnesses and trying to get them automatically approved for SSI disability! I know Chrons run in Jewish heritage, i am kind of opposite of it (my colon hardly functions at all) but i've hard it can be awful when it can't be managed or w/extreme cases. I am hardly functioning, i think b/c of all the meds i'm on, which is necessary to control pain and all my multiple issues, so my Dr is working on getting them managed- see Pain Dr tomorrow! Thank you so much for the message!

Jun 19Reply

eburkett @shoret411 Renee, my heart goes out to you! I live in doctors office's too! I hope that you find a doctor who is open minded enough and will think outside the box for a way to get you some relief! My mother and I both suffer from auto-immune afflictions...Your condition is far more rare than ours.... But I've met one Jewish guy in his late 20's with your condition. He said after decades of tests, diets, blood work, and sickness he found a homeopathic doctor out of Colorado who treated him with a derivative of medical marijuana. ...And he is in much less pain, the spasms can be calmed/tamed, and there are no harsh side effects like the usual ones from experimental drugs. Sounds crazy but it's just a thought? Meanwhile, on a more positive note... You are beautiful and you're closet is awesome! Can't wait to share all of your cute stuff with my friends!!! Have an amazing day.... Despite it being a Monday!!!

Jun 23Reply

shoret411 @eburkett aww thank you so much for the message!! What is it that you have? Are you talking about Marinol? I have tried so many things and so many Drs and I basically have to try to treat all my symptoms and ease them as much as I can at this point... It's hard not to give up hope that I'll get better when so many drs have given up and I'm living off of morphine just to be comfortable enough. I'm so grateful that I'm finding support on PM, it's always so reassuring to meet people in the same situations.

Jun 24Reply

frogs4me430 Hi Renee! I'm Stacy, it's nice to meet you. I feel your pain. I have Crohn's Disease & it can be a huge pain in the butt! (No pun intended) I think it's very cool of you to talk about this. I'm not always able to do that. Living with constant pain can be really hard but knowing other people are going through it too can help! Sending hugs & healing thoughts your way!!! 💚💚💚

Jun 26Reply

keg90 @shoret411 it sounds just awful & painful. Isn't it amazing the empowering people you find on PM. The women you are, & have endured so much... There truly is some support here. I wish you continued support & healing / hope & some help with your illness. <3 happy Poshing to help ( Kim / keg90)

Jun 28Reply

shoret411 @keg90 thank you

Jun 28Reply

shoret411 @frogs4me430 Hi Stacy. Thanks for the message. I def agree. I have found the most support online with others in similar situations but with friends and fam who don't understand it is very difficult!!! I hope you are having a good day today!

Jun 28Reply

luvsmink Hoping things improve for you, honey💕💕💕💕💕💕💕

Jun 29Reply

shoret411 Thank you @luvsmink

Jun 29Reply

keg90 ☺️❤️

Jun 29Reply

tazze @shoret411 🙏🙏for you😘😘

Jun 30Reply

willbringyoujoy @shoret411 - My friend has been dealing with gastreoparesis for the past decade as well; she had a pacemaker implanted in her stomach. I'd be happy to ask he to reach out to you if it'd be helpful.

Jun 30Reply

shoret411 @klmvirginia tysm! I am in a GP Facebook group tho so I have a large community of people I talk to with similar issues bc we are a better resource than Drs lol. I don't have a stomach pacer since I don't vomit but I hope it's helping ur friend!!

Jun 30Reply

247jewelrystore Hi Hun hope your feeling well

Jul 01Reply

shoret411 @247jewelrystore Thank you!

Jul 01Reply

emmasaddiction @shoret411 Hi. It's Louise again, from Northern California. Just checking up on you. How is the pain doc working out? I wish I could buy from your closet to help out but everything is too tiny. I'll save up for the Coach scarf♥♥♥♥♥♥♥♥♥♥♥♥

Jul 01Reply

paintedjezebel So very sad :( wow!

Jul 01Reply

shoret411 @lagoldy44 Hey. Pain Dr is trying hard! I see him every 4 weeks and have a VIP primary Dr that i have 24/7 access to, so i'm starting to get more help. Ya know, if u REALLY want to help.. you could always just send me the money w/out buying anything! lol Or you could pay some bills, buy me stuff, etc. etc. haha JK don't worry, these clothes don't fit me either! Thanks for the message :)

Jul 01Reply

mesaprano I'm so sorry you have to deal with this😢

Jul 01Reply

platinummermaid @shoret411 I am so sorry to hear that you are sick with something so painful 😞 I will keep you in my prayers. May God Bless You and Heal You!! ❤️

Jul 02Reply

shoret411 @65ds_do_it_btr Thank you so much for the kind message and prayer @mesaprano

Jul 02Reply

mesaprano You're very welcome💕 My daughter has Chromes Disease and I watch her suffer a lot from it😔I'm also a cancer survivor, so I know all too well about a debilitating illness. You will be in my thoughts and prayers💕

Jul 03Reply

katz2 Just read your listing. So sorry you have this. I admit I have never heard of it before. Sending healing thoughts and prayers your way.💖 I hope your new Dr. helps.

Jul 03Reply

shoret411 @mesaprano I'm so sorry, I've heard Chrones is awful. Congrats on being a surviver! That is amazing! My Dr told me Monday that i'm on more pain meds than a lot of dying cancer patients.. and i'm still in pain. I need to talk to my pain Dr, it's just awful and very debilitating!!

Jul 04Reply

shoret411 @katz2 Thank you so much for the message and taking the time to read! :)

Jul 04Reply

katz2 💖💖💖

Jul 04Reply

mesaprano I'm so sorry. My daughter is on Tramedol, pain med, but she's coping. She's 23, single mom, in nursing school, and very independent. I try to help her, but she insists that she's ok, but I see her in pain, and it hurts my heart💗I'm so sorry that you have to be on all that pain med just to not be in pain. You poor girl😢😢😢😢

Jul 04Reply

shoret411 @mesaprano It's great if Tramadol works for her, b/c it's the strongest pain med that isn't a narcotic. I took it for a while, but it does nothing for me. You have to be very very careful with it (i'm sure she knows as a nursing student!) It has several hundred drug interactions, more than i've seen with any other drug! I mixed it with a muscle relaxer and had really bad hallucinations one night! I have a B.S. degree before i got sick, and then started nursing school and had to quit. Having health probs make us more sympathetic and empathetic as nurses and interested. I got my pre-recs in science done but only 1 1/2 nursing class. I'm currently on 200 mg of morphine 2x day (every 12 hours) and then Norco 10mg (Vicodin and tylenol) daily as needed. I hope your daughter has great Dr's!

Jul 05Reply

shoret411 @mesaprano I started w/all this around her age also! I quit when i got to clinical time b/c i knew i couldn't do 12 hrs, but once u get your nursing degree there's so much therse days u can do with it that isn't just 12 hr shifts at the hospital that would be easier to work around the pain. What kind of cancer did u have?

Jul 05Reply

mesaprano I've had cervical cancer, and another type that's a precursor to cancer, called Barrett's Esophagus, it's esophageal cancer.

Jul 05Reply

pamperedmolly Hugs from Auburn, NY to you with prayers.

Jul 05Reply

shoret411 @mesaprano omg, i'm soo sorry! But so happy that you are cancer free now! Are u still in remission? I recently tested positive for HPV (supposively the high risk kind) but pap was normal so i just have to be watched and hopefully it'll go away. How did you "fix" your esophagus?

Jul 05Reply

shoret411 @pamperedmolly Thank you!

Jul 05Reply

mosha @shoret411 I'm so sorry you are going through all this, sometimes we don't understand why all this even exist, but only God knows why, I was diagnosed with leukemia 7 years ago, had the strongest quemos, a bone marrow transplant, spend many months in the hospital really bad with only 20% of chance to survive, but I'm here, well still with a lot of secondary effects and a lot of medications and disabled, but always with faith and living one day at a time... A few hours ago I was reading about (gelatin) and there's a lot of benefits, like for joint problems, and also says that repairs damage digestion and intestines, did you heard about it? Maybe you should take a look in google, I also have a link for the product on amazon, because it looks like it's not the comun gelatin, it's a different one, I can copy the link for you, you have nothing to lose giving a try, I really wish this can help you in some way 😘 God bless you and I'll keep you in my prayers. .

Jul 08Reply

mosha @shoret411 here's the link. http://www.amazon.com/gp/aw/d/B001ELLBJS/ref=redir_mdp_mobile?camp=1789&creative=9325&creativeASIN=B001ELLBJS&linkCode=as2&redirect=true&ref_=as_li_tf_tl&tag=mommypotamus-20

Jul 08Reply

mosha @shoret411 I think you're not gonna be able to use the link, if you want you can give me your email and I'll send it to you

Jul 08Reply

shoret411 @mosha thank you for your prayers

Jul 08Reply

mistielee @shoret411 Hi Baby Girl!! Hope your feeling well today💕thank you for all your lovely shares!! Happy Poshing, Renee!

Jul 08Reply

shoret411 @mistielee thank you. It's been an awful day.. I have a fever and transitioning pain meds, having bad side effects 😥 thanks for asking and all your shares also.

Jul 09Reply

mistielee @shoret411 Awe... Well I will be thinking of you Renee💕 try to rest honey. And your always welcome on the shares!!💖

Jul 09Reply

myin2828 OMG!! So sorry to hear about this Renee... I hope you feel better soon! Praying for you girl~~~

Jul 15Reply

shoret411 @myin2828 TY Laura, i've hardly been on here lately, i'm hardly awake and at Dr's when i am.. i'm just miserable trying to find the right meds and having so many awful side effects :(

Jul 16Reply

myin2828 oh geez.. i hope the doc will help fine the correct med for you asap... i wish i can beam the away your illness~~~ will be praying for you Renee~~~ hope you can get some rest :)

Jul 16Reply

shoret411 @myin2828 Thank you. I've been on diff 24/7 pain meds and last one made me have night terrors and i was shaking, screaming, scratching myself in my sleep... was awful, so i just switched and now this new one is giving me fevers and hot/cold and i feel so miserable :( (on top of everything else) I need to call in the a.m.! I wish you could beam it away too!! lol Posh is a great distraction when i am awake tho!

Jul 16Reply

myin2828 that is horrible... such high tech industry and everything is being so advance, you would think they will have some med or cure for this... geez.. i'm just so speechless.. i'm just praying that you feel better everyday Renee... Lord, please help my new friend find a correct med for her!! praying for you my friend~~~ please take it easy and be strong! and try to get some rest... xxoo

Jul 16Reply

shoret411 @myin2828 you're sooo sweet!!! There are actually neuro-stimulators.. kind of like pace-makers that can be implanted and then the leads go into your spine and they help mask the pain (you have a remote to turn it off and on) I really wanted to do it but my pain dr thinks my pain is too spread out to help, but this is the newest thing being used for all sorts of conditions! I have a bladder disease and some use it to help w/bladder frequency issues. At this point i'm kind of hoping for medicinal marijuana here b/c it's safer than narcotics long term... they will eventually shut down organs and have so many side effects (my whole body is sooooo dry too!) Thank you so much for your prayer, it means a lot!!

Jul 16Reply

myin2828 aw man, i thought at least that will help with reducing the pain..but doc said it's no use...darn!! gosh, i guess we have to learn to be patience and hopefully something new and awesome will come out to help with this issue.. and drink more water to help with your dehydration too.. take care Renee and hope you get some sleep.. have a good night my friend~~..

Jul 16Reply

ringleader I was wondering how you are, Renee. I think last time I talked to you you were hoping for a diagnosis of some sort. I just had a friend who had an operation to deal with her paralyzed stomach. So much tough stuff to go through! Hope you're doing ok! You were going to visit family for a weekend or week at the time. Hope you had a lovely time! 🌸

Jul 16Reply

obeast @shoret411 ❤️😘 OMG I TRULY FEEL 4 u Luv ! I GET THE SAME EXACT THINGS SAID 2 me! "U don't look sick, I wish I had time 4 a nap, u don't look sick, maybe if u'd just exercise..." Sometimes I just want 2 slap me some damn people! lol my illness is different than urs but much the same... I have Fibromyalgia & it's a loving HELL sometimes! There's a lot of stomach & eating issues that people just don't associate w/ it. Plus I'm diabetic, & I've dropped 20lbs n the last few months. My life is a life of pain & there's nothing I can do about it & people who don't have it cannot possibly understand it.... Or unless they help care 4 someone who has it on a daily basis & sees their pain written on their faces every-single-day....I'm so sorry that u suffer w/ ur illness everyday Doll! I would like 2 say I can't imagine... But n my own way, I can... Maybe someday they WILL find a cure. Or @ the very least a drug that will help w/ the symptoms of ur illnesss... We can only pray! B/c it is NOT all n our heads as many people believe. But they only say this b/c they don't suffer from this.... I pray now that u find relief Sweetie....♥️😘💟💋♋️

Jul 19Reply

tinamarie_33 Many blessings to you my dear....🙏🙏

Jul 20Reply

stfredrickson Prayers love. :)

Jul 23Reply

shoret411 @tinamarie_33 @stfredrickson Thank you so much!!!

Jul 24Reply

kyja1224 I understand 24/7 pain so sorry you have it also for five years I have been in constant pain in my right side under My ribs I have been to a bunch of doctors not one can give me a diagnosis. It is hard to deal with some days. I have never heard of your disease I am going to look it up I don't wish constant pain upon anyone. Hope you get better!😀😀😀😀😀

Jul 28Reply

ninja64 I have never heard of this! I get stomach aches all the time too. I don't think I have this, but I can empathize with how you feel a bit. and having chronic pain myself, people just kind of think you are lazy or a whiner so you just try to deal with it. I'm sorry you are having to cope with this. Thanks for the information.

Aug 01Reply

brookesgranny I'm keeping you in my prayers,

Aug 07Reply

bkimh @lovecolor7 Kitty, I so relate to what you are going though. I am praying for you and hope to get some help. I have pretty much everything you have mentioned. 🙏💖💖

Aug 13Reply

bkimh Renee, I am so very sorry you are having to go though so much at such a young age. I pray that the feeding tube is not going to be needed. Please know that God can take care of you if you will just ask him. Please don't turn away from him. Ask he will answer. I am praying for you. 💖🌹🙏kim

Aug 13Reply

pinkdiamonds This is exactly what I was diagnosed with 7 years ago. It took forever to be found after about year and bald throwing up 50 to 60 times an day and loosing around 80 pounds and 5 hospital stays. I have to say that time in my life I was the worst ever I really felt like my lid eWorld never be the same again. I thought I'm never gonna be able to work have a life family boyfriend married kids anything but thank god every day my doctor found a antibiotic that was able to get my stomach to process and I still have minimal symptoms sometimes I gag for no reason and get nauseous quickly but that also goes along with my anxiety and depression,. I feel for you and can only say hang in there....I tank god am over thank and pray everyday not have to deal with that agin but you have my heart and prayers I was there and just want you to know I am here and I was very lonely and considered not living anymore but please know you can have a new normal and can make it through!💚🙏😍💜💋

Aug 13Reply

shoret411 @pinkdiamonds wow, that is very strange that it just took an antibiotic? It's usually caused from vegus nerve damage, diabetes and unknown causes but there is a rare cause from a virus... I've just always read that it never goes away and there's a few meds from Canada that sometimes help (not FDA approved) but the side effects can be even worse.. I'm glad u are better. I know a girl who lost about 90 lbs from throwing up from it too. I actully CANT physicly vomit since 2006 when it all started but get super nauseous and wish I could :(

Aug 13Reply

shoret411 @ninja64 thank you. It's not a "stomach ache" tho... It's very intense pain!! I feel like stacks of bricks are on top of me, as soon as I eat I'm immediately in pain... My colon doesn't function so that adds to it (if I have a BM I don't get any relief like if ur stomach hurts) plus I have chronic pancreatitis which is very painful. My food doesn't digest very well and just sits there... I'm glad to be educating people and it's more common. Drs just aren't aware or educated

Aug 13Reply

shoret411 @brookesgranny @bkimh Thank you so much. Wound up not needing tube.. But I'm on 3 diff pain meds now and very drugged 😁😥 thanks for all the messages and prayers!!

Aug 13Reply

bkimh Renee that is great news I think I would take the meds! It will keep getting better🙏🙏 Kim 💕

Aug 13Reply

pinkdiamonds Aww Hun that's horrible to be nauseous and can't throw up wow! I can't even think of that wow! The doctor said it wasn't a virus but the antibiotic stimulated my stomach because it was paralyzed for that time. The doctor said it could have been stress reaction .....I had just had my dad had a stroke, my grandfather was dying and died of leukieuma and my other grandpa passed away all around the time and my body reacted in that way. But I know I will have this to deal with forever but hopefully god willing and praying never this bad again. Prayers to you !🙏😍💜💋💚

Aug 13Reply

shoret411 @bkimh it's not going to get better... The pain meds slow down the digestive system even more.. But at this point the Drs just want me to be comfortable. I'm on more pain med (along with lots of other meds) than dying cancer patients.. Eventually this will hurt my other organs and kill me. My dr calls my list of meds "a death sentence"

Aug 13Reply

shoret411 @pinkdiamonds Gastroparesis cannot be caused by stress.. Are you sure it wasn't gastritis or something else? You can go into remission, but it never goes away and there's so cure. A lot of girls have been dying from it bc they're so malnourished.

Aug 13Reply

pinkdiamonds Well mine was and I went to a specialist of it and it was diagnosed as gastroparisis so yes it is possible for stress and I understand how girls dying from it it takes the life out of you. You know that !

Aug 13Reply

shoret411 @pinkdiamonds what do u mean a specialist of it? A GI dr? a motility dr? I went to The Mayo Clinic (the best hospital in the country, u have u apply with ur medical records to even get seen, it's like applying to college, most get rejected) and I just saw a GI Dr.. but my Dr here is going to send me to a motility specialist.. which is more specialized of GI

Aug 13Reply

shoret411 @pinkdiamonds Hun, you had GASTRITIS, NOT Gastroparesis! Your stomach cannot become paralyzed from stress.. and it does not go away and definitely cannot be treated with antibiotics b/c there is NO CURE! We've been using drugs from outside the country just to treat the symptoms!! Gastroparesis is a major thing!! look at this link for "gastritis" and i'm sure you'll realize you got the words confused!! This is INFLAMMATION (not paralyzed.. which means it doesn't work) and it can cause bacteria and infection which is treated with anti-biotics and makes a lot more sense!! You DO NOT want Gastroparesis!!! http://www.mayoclinic.org/diseases-conditions/gastritis/basics/definition/con-20021032

Aug 13Reply

shoret411 @pinkdiamonds Thank you for your concern and prayers. For me there will be no normal or "getting better". I've been sick since 2006 starting with my pancreas and gall bladder and things just keep getting worse and more issues w/different organs and parts of body. At this point the Dr's just want me to be comfortable... i mean i'm on more narcotics than a lot of dying cancer patients, and still in pain! and my pcp said i won't live another 30 yrs like this b/c the meds alone will ruin and stop my organs from functioning.. my parents are in denial and still have hope that i will "get better" and be able to work and everything. It's not the life i planned or wanted :( I've hardly been on here the past week or so

Aug 13Reply

shoret411 @kyja1224 Just saw your comment. I get stabbing pain on my sides, under ribs, from being so constipated. Usually it's the left side when you're constipated b/c the colon starts on your right and finishes on the left. If u think that's a possibility u should try cleaning out.. if you've had a chest x-ray (i'm assuming if you've had that pain for so long!) they will usually tell u if you're clogged up.. another thing u can look up is "costocondritis" which is inflammation of the ribs.

Aug 13Reply

shoret411 @kyja1224 one more thing.. if ur pain is from "stool"... pain meds don't help! my colon doesn't function so i'm always full end to end in xrays and when i have that pain, my strongest narcotics don't do anything, so that's also a hint if you've tried pain med, and if you try ibuprofen and it does help, then there's some inflammation issue!

Aug 13Reply

kyja1224 @shoret411 thanks that does make sense to me with my issues

Aug 13Reply

shoret411 @kyja1224 No problem! I hope you can figure things out and relieve the pain! I've been dealing with all of this for so long that I've learned so much and always glad to help others! Sometimes patients are better help than Dr's b/c they are actually feeling it and going through it! lol

Aug 13Reply

kyja1224 Absolutely

Aug 13Reply

shoret411 @pinkdiamonds one more thing... when i said people are dying from it, it's b/c with GP you get full so fast, like i only eat a few bites of food & i'm stuffed, and in pain. Being limited on only soft foods/liquids, plus the limited intake since we can't eat.. our body's are malnourished and that's what people are dying from...even those on feeding tubes and TPN b/c it's so few calories a day! Even tho i "look" healthy.. my body went into starvation mode and caused me to gain weight from not eating! (plus nothing comes out of me either end!) Hopefully dr's start learning about this awful disease and someday there will be a cure for paralyzed stomachs!

Aug 13Reply

tango4delta Oh honey I know what it's like to be sick and in pain ALL THE TIME, having the life you enjoyed being turned upside down, having people judge you, fighting depression and those days where you ask "why me". I have Interstitial Cystitis (IC) the lining of my bladder is disappearing so I have tiny holes in my bladder and the acidic urine burns those holes, there is no cure, there are some people who don't have pain but I do and have the most severe type there is of IC. The best way to describe it is if you have ever had a bladder infection it feels like that but times one million....there are days when I have "flares"..so the pain is worse and I have to go to the bathroom every five minutes - literally!! It's hard to go anywhere because I could be ok then an hr later having a flare. My bladder gets more and more damaged as time goes on, especially since now I have real bladder infections but don't realize it because it just seems like long flares so I get very sick and each infection causes more scar tissue to form so the bladder cannot fill the way it should, till eventually some people need to get it taken out and have to have a pouch outside their abdomen as their bladder. I am praying for you sweetie, your disease sounds so terrible, I never heard of it before. If you ever want to write me my email is heatherlovesjim@icloud.com, put "chronic illness sister" in heading so I know it's you😊 My name is Heather, many blessings to you hon, big {{HUGS}} 💕😊🍀🍀🍀🍀

Aug 16Reply

shoret411 @tango4delta yea I have IC too. I took Elmiron and bladder frequency meds for many years but I'm in remission right now. I've done installations and all that. Are u on Elmiron? It helps repair the lining of the bladder it just takes like 3 months to work but helps a ton!

Aug 16Reply

tango4delta @shoret411 actually I was on it as soon as I was diagnosed but it gave me horrible migraines and actually increased my bladder and pelvic pain, so I can't take it. I'm part of a small percentage that has reactions like that to Elmiron. There is nothing that can be done except palliative pain care. My first urologist had to let me go because I exhausted all he knew for efforts to help me then I saw my second one who is actually an IC Specialist and he told me after months and months of instills, other meds for nerve pain (awful reaction to that too) so he told me till something is discovered to help cases like mine, the only thing he could do for me, he said I had to go on Pallative Pain Care, set me up with my Dr who I love, but it was over a ur and a half till I finally had my first meeting with him (the waiting list is THAT long for people that need to see him). I walked in weighing 98 pounds and shaking like a leaf with a very high BP. So I have more pain control and things were ok till last yr when I started getting massive bladder infections and continued to have them right up till now. My IC specialist was so kind though because when I kept being told I had to wait another nine months to a yr to see my pain Dr he told me he would give me pain meds till I was under my pain Drs care, and he told me he NEVER does that for patients but I was the worst case he had seen in many yrs of working with IC patients. so now I'm just taking it day by day and praying things get better for all of us who have to live with chronic life changing painful illnesses. Thx for writing to me sweetie - xoxo💕🍀🍀🍀🍀

Aug 17Reply

shoret411 @tango4delta WOW, i've never heard of such a bad case, i'm sooo sorry!!! The only other thing i can tell you.. not sure how old you are, but I'm on birth control pills and when I tried to go off them, my IC majorly flared up and i was in soo much pain and then once i went back on.. it got much better! My urologist said most of her patients are much older so she didn't know much about B.C... so i won't ever go off unless i'm trying to get preggo. Another thing i found.. Midol helps my pain (even if not period related- which i only do 4x year b/c it's so painful but it's the only thing that helps me) I'm in "remission" and my Dr said it's common around my age, i'm 30... i think i just have a mild case and am lucky. I'm on 2 pain pills daily 24/7 and sometimes a 3rd as needed, which might also be helping but my urologist is having me come back soon b/c she's worried about being on so much pain meds and my bladder now and going to do some tests when i go back. I'm so sorry you have this awful case! You might even try looking into Mayo Clinic since they do research!

Aug 18Reply

ali65 Your 4,th picture brings tears to my eyes, I know someone with this Aweful disease, she's on so many meds, that make her bloated, all kind of side effects. It's bad. You'll be in my prayers.... People can be so , sorry don't use this often... STUPID. With their comments such as these.

Oct 01Reply

shoret411 @ali65 thank you so much! I can bloat like I'm 6 months preggo, it's awful! I'm in FB groups called G-Pact, it's such a wonderful support community if ur friend hasn't heard of it.

Oct 01Reply

dollface86 I've never heard of this before, thank you for sharing this with us & I'm so sorry you have to go through this, but I'm also really encouraged by your great attitude 😊😘💕

Oct 02Reply

shoret411 @jrtharcrow

Oct 22Reply

project_lw One of my best friends has GP. Do you know Emily's Stomach?

Oct 25Reply

bellasbeauties I have a girlfriend with this. She ends up in the hospital all the time. I'm surprised they don't give people with this a colostomy. Have they ever thought about doing that or would it just not do any good? I have a colostomy from a horrific accident 31 years ago when I was only 15 years old... I'd love to talk sometime if your ever up for it.. I'm Bella nice to meet you.

Oct 26Reply

fashionlover_17 @shoret411 I'm so sorry to hear this hun, my prayers are with you🙏

Oct 27Reply

shoret411 @project_lw is Emily's Stomach a website or blog or ?? Haven't heard of it. I'm on the G-Pact support groups on Facebook and have gotten a lot of help and support online with other women who have GP!

Oct 28Reply

shoret411 @liliya2013 thank you!

Oct 28Reply

project_lw Blog! She has a Facebook page too, and I think Twitter as well. She also has Pinterest boards devoted to GP-friendly foods and things, but I don't know if she has those public yet.

Oct 28Reply

shoret411 @uzanne Hi Bella, thanks for the message. There are several people who do have their colons (or partial) removed. It seems like it's not that helpful for everyone tho. I talked to a Dr about it and since I have the ability to go.. They decided it wasn't necessary. Actually.. The ONLY thing that makes me go is narcotics! (Which is total opposite and makes no sense) I've tried every laxative and prescription... Dr is happy if I Have BM even once a week at this point! Thanks for writing! I'm on here off and on, depending how I'm feeling, lately I can hardly stay awake and tons of dr appts, but write anytime!

Oct 28Reply

lachester68 It's comforting to have so much support, you're not alone in your struggles. You have support from all these wonderful ladies on PM.

Nov 16Reply

shoret411 @alise28 TYSM! GI probs are awful, hope you are getting the proper care and doing well yourself! @lachester68 Thank you as well!

Nov 18Reply

phoebescloset11 Oh sweetie. I'm so sorry. I will send all my love & many prayers your way. 🙏❤️ God Bless You. If you need anything pls don't hesitate to reach out to me. 😘

Dec 09Reply

shoret411 @phoebescloset11 aww thank u so much!! I def need sales but I've hardly been on here for weeks!! I've only been awake 6-8 hrs a day, the days I'm not sleeping!! And with Drs and holidays, haven't had time to keep up with Posh! Ty for the message!!

Dec 11Reply

lovecolor7 Hi! Was reading through some of your comments and sounds like you've been through the ups and downs since the last time we chatted. The constant discomfort to horrible, unrelenting pain takes such a toll that it is just not easy to explain until you live it. It makes you crazy! Well, it made me crazy. Things get so warped and distorted. I'm glad you have some good drs working with you and the FB group you like. Health is everything and when we lose it or it's taken away, it just wears on you, it's very difficult. I'm sorry you have to cope, manage and at times survive until the eye of the storm passes. I know it will continue to be there but I hope you get reprieves, some comfort, relief. My bf has GI issues but they pale in comparison to yours so I have an idea how it can really interfere with life. I just had my back surgery but I think I am getting better so I'm sort of excited and scared that maybe I'm imagining. I've been so bad for so long I'm not sure what to think. And I have other body parts that need repair but what can we do? Just keep at it. The pain is the worse, I don't know how we cope. I get angry a lot so I don't burst into tears but that's not helpful nor a good coping mechanism. It's like I want to get better so bad but at the same time, time is passing and it's making me nervous because I don't want to lose important periods of my life, I've done everything from trying to imagine I'm ok to rolling around in agony. No rhyme or reason. I'm glad you are still active on posh even though you may need downtime from it, just good to know you're still having at least a little fun with all us women, many of who are coping with some serious challenges. And you're very brave for sharing so freely, thank you. I'll be thinking positive prayers (minus the Jesus) for you😻

Dec 12Reply

samanthaamos11 Can u tell me a little more. Like why cant u eat food in front of u? Never heard of this & im having issues. Thanks.

Jan 06Reply

samanthaamos11 Sorry i didnt see the website but went on it. And it taught me useful things! Thanks for posting. Good luck with everything!

Jan 06Reply

acephalous Sounds just like Lupus. Its all in your head, they said! I saves you in my likes, so I wont loose u.

Jan 17Reply

thardyrn This sucks I know how u feel cuz I was just diagnosed with it ! People think it's not a big deal I was one of them UNTIL I had to go thru it an educated myself !!! Prayers and happy thoughts are with u

Feb 02Reply

shoret411 @thardyrn You have GP? most people haven't even heard of it!! Until the past few years.. a lot of Dr's didn't even know about it.. lots of young women are dying from Gastroparesis b/c we are so malnourished and feeding tubes and TPN can't keep everyone alive. I hope your case isn't too severe! Hope you're having a good belly day.

Feb 02Reply

shoret411 @acephalous I have been tested for Lupus and so far it's negative, but my mom just got diagnosed a few years ago with Lupus and RA and had symptoms for years until it showed up. I have so many multiple issues.. mostly GI (pancreas, colon, stomach) but now i have lots of auto-immune symptoms that keep popping up, def not the body of a 30 yr old!

Feb 02Reply

shoret411 @thardyrn I'm kind of confused if you are talking about GP or something else since u said you "had to go through it" b/c there is no cure and it's def a big deal? Would be surprised if u knew about it unless u had it? But if that's the case and u dont have anyone educating u.. check out G-Pact on facebook, great support group where people ask others questions and there's even groups divided by age! It helped me soo much in the beginning!

Feb 02Reply

thardyrn @shoret411 thanks for your comments ! " I had to go thru it " I meant I had to to thru the process of educating myself because there's so much to learn ! I am a nurse and I didn't even know about this disease ! There's so many gastro diseases I personally thought it was just another dx that wasn't a big deal but I was wrong ! I spent two weeks in the hospital just last month myself boy did I get educated !!! I was told mine is very mild but that could change ! I don't really think these doctors know enough about it to even tell u that ! Idk I could go on and on ! Thanks for the advice on support group I will check it out !! God bless 😘😘

Feb 02Reply

shoret411 @thardyrn I had someone try to tell me they had GP when it was just gastritis so sometimes I'm not sure lol. This G-Pact group is the best bc we are more educated from experience than Drs. Some drs only go by the gastric emptying study results and a lot of patients don't believe it's accurate. There's also this book Living a Well with Gastroparesis by Crystal Saltrelli? She also has YouTube videos and a FB page.

Feb 02Reply

gators73 IM sorry to hear thst u are going thru this. I wanted to let u knw you are not alone. I dont suffer the same disease but a disease thst has similar symptoms. I hsve had ppl say the rudest things to me....not meaning to but still very hurtful...everyday can be a huge struggle and bc we dont have outword symptoms ppl think negstive thoughts etc. Anywsy...here if u needanything. Prayers sent up for u. 💙

Feb 14Reply

shoret411 @gators73 thank you so much!! I have so many multiple issues, started at 22 and now i'm 30 and keeps getting worse (plus side effects from all the meds) and it's so awful and people don't understand how hurtful they are.. sometimes i just think about how i can't wiat until they are 80-90 yrs old and hope they think about what it would've been like going thru this at 20! (except everyone their age will be sick and tired too) Social media has been great for me for support (i hope for u too)

Feb 14Reply

gators73 @shoret411 it is such a challenge. I knw exactly what u are saying. THE meds reak havoc with ur body....ur mind....how it breaks dwn ur spirit. IF.u wld like to tlk further...privately....im open. JUST lmk

Feb 14Reply

kellidavis05 Omg! My heart is heavy after reading this! I can relate, I've been hospitalized multiple times over the past 2 years with acute pancreatitis....still no answers of the cause. It really is emotionally and physically draining! Hang in there:) XO

Feb 14Reply

shoret411 @kellidavi05 ouch! pancreatitis is so painful! are you diabetic or anything? I'm not.. but all my probs started with my pancreas at 22..i had 2 ERCP's for papillary stenosis.. they cut into my pancreas and bile duct and left stents in for 4 days then took them out- supposed to help for up to 20 yrs and the first lasted about a year and a half, 2nd didn't work at all.. and i have chronic pain there and still elevated lipase. I hope yours goes away or gets figured out! (22 was really hard since I couldn't drink and i was still living in a college town!)

Feb 14Reply

mountainwriter I've just been reading through this, and something that I've come to learn that has helped me is that if there is someone that says something rude or ignorant to me, they just haven't had that one experience in their life that shows them how they aren't really in control as much as they thought they were. But they will. I keep reminding myself that at some point in their life, they will have that one experience that teaches them. They'll feel out of control and unsure of themselves, and then they'll realize that they've been so, so wrong. Too many rush to judgement and shoot off nasty comments not even realizing how hurtful they are. I just remind myself that they'll learn. They just haven't gotten there yet. It helps me feel more compassionate toward the idiocy that is sometimes slung my way. Hang in there and be strong, Renee! -- Justine (RWiF)

Feb 14Reply

busygirl8 @shoret411 Thank you for sharing your story and you will be in my thoughts. I also have chronic illness (cancer) and it can be so debilitating. Please don't give up on falling in love; it can and does come calling...my hubby is something I didn't expect.

Feb 19Reply

shannonkimberly OMG, @shoret411, first and foremost, I'm so very sorry you have to deal with such a terrible illness! If it's not too personal, may I ask how you were diagnosed, as well as if you've found any relief by following a certain diet, taking medication (s), etc? I ask because this all sounds exactly like me, except I have endoscopy/stomach biopsy confirmed Celiac Disease as well, which would've explained some of the similar symptoms... 3.5 years ago when I was diagnosed, but certainly not today! So, yeah, anyway, given that I haven't touched anything with gluten since my diagnosis, and I'm still experiencing similar symptoms, I'm wondering if, perhaps, it's not all related to my Celiac Disease or "in my head!" (Ugh, that phrase!😡) TIA! ~SKC💛

Mar 05Reply

geminiblue Thank you for spreading awareness. I wish there was something they could do to ease your discomfort!

Mar 17Reply

tippiejax THANK YOU for posting this! I too, suffer from this awful disease. Hugs to you😘

Mar 25Reply

tippiejax @ridinghood13 I have severe GP! That's why I've been so sick and out of work for the past 7 months! I didn't know you had it on top of everything else. Lordy. We are lovely messes, girl😘

Mar 25Reply

shoret411 @tippiejax once I posted, it's amazing how many others you find. Prob bc we are all unable to work and on here.. I just filed for Disability and got it right away. I have GP & several other Issues. I like all of the G-Pact sites on FaceBook for support. I hope you are having a good day today.

Mar 26Reply

shoret411 @tippiejax I see in UR pics U have the more typical "appearance" of someone with GP. I have gained a lot of weight from not eating and I physically can't vomit (and my colon doesn't function) so I "look" healthy which makes it harder sometimes with Drs..

Mar 26Reply

tippiejax I had ran into that problem with doctors--they all think and say "you look great". It wasn't until I started taking photos of my self when I weighed 155 that the action took place. I'm shocked you have gained weight. My colon is also a mess: the entire motility of my Gastro track is slow as a sloth. Impactions happen frequently.

Mar 26Reply

tippiejax Thanks for the disability info! I am just getting my ducks in a row to get ready to file. It's supposedly very hard in AZ. You give me hope. I'm too weak to ever hold a normal job. The key for me was finding the most amazing gastro doc EVER. All my best to you. I am so sorry and so get the pain.

Mar 26Reply

southernstyle88 @shoret411 Happy Birthday Renee! Good Lord, Didn't get to read the whole thread , but what I read blew me away. I got down to where you went to see the new Dr. That takes only 500 pts a year. If I read too much it gives me a migraine. Catch me up from there if you can. I suffer from colonic inertia. My colon doesn't work on its own. I'm laxative dependent at this time. But I got to where I couldn't eat at one point..

Apr 18Reply

shoret411 @sherry8888 honestly my health changes all the time so idk how to catch up or remember what happened then or since lol. I have colonic inertia too but no laxatives or Rx's work for me... Yet no Drs are worried what is wrong with my colon or how to fix it. I'm just on so many med and narcotics... My sitz marker test was way slow when I wasn't even on narcotics!

Apr 24Reply

southernstyle88 @shoret411 Your the 1st person that's ever even heard of what I have & to find out you have it also. After the 5 day test, I had 6 of the 24 sitz markers still in my stomach that never made it to my colon. My colon doesn't work either. Will face having 80% of it removed. Just trying to wait as long as I can before I have to have that surgery. It's getting harder harder though. If I don't take anything, I don't go. The longest was 15 days before Dr figured out what was wrong. UGH

Apr 24Reply

shoret411 @sherry8888 I've gone 3 weeks up to a month... But told I don't need removal since I have the ability to go. I did pelvic floor therapy but didn't help

Apr 25Reply

ciaoamore2 @shoret411 I have never heard of that before. I'm so sorry your going through this .. I hope there's a cure .. And that it will be better soon.. I will pray for you 🙏🏻 😘😊

Aug 03Reply

shoret411 @ciaoamore2 there is no cure ;( but thank you so much!

Aug 03Reply

cutesuzie I just like love you and so much prayer for you this must be so hard for you wish you all the best be positive 😍👍😍😉

Aug 18Reply

shoret411 @cutesuzie Thank you

Aug 18Reply

mzehner2001 @shoret411 sorry for your illness😢 hope tomorrow will be a better day. I have Crohn's disease so I understand your pain and never knowing if today will be good or bad. God Bless You, Melissa

Sep 13Reply

camiller Sorry to hear about your condition it must be tough I will keep you in my prayers. Take care

Oct 05Reply

shoret411 @camiller thank you so much!

Oct 05Reply

teeena Gaaarl I will pray🙏🏻 that the LORD heals u from the top of your head 🙇🙇to the soul of your feet👣👣IN The Whole Entire Name of JESUS! & trust me HE Can Do it! I am almost 50 & this year HE Healed me of a Chronic Disease that I suffered w/ for 20 years! Absolute horrible pain! All Things r Possible & I Mean ALL! HE is no respecter of person if HE DID it for ME HE will do it for you! Just believe it I'll pray it & HE'LL DO IT! Can I Get a witness somebody!🙌🏻🙌🏻🙌🏻💃🏼💃🏼💃🏼💃🏼💃🏼🙌🏻🙌🏻🙌🏻

Nov 07Reply

me_luv_fashion Wow. I hope it gets better for you. :)

Dec 02Reply

scorpio1983 @shoret411 hey I totally feel for you, I have Crohn's disease. I know it's diff but I hear ya. I hope your feeling well. Enjoy your holidays 😊

Dec 17Reply

aksleder @shoret411 I understand what you're going through. I have the same condition!

Jan 06Reply

wackywoman68 I am not happy cuz hit the heart, but i can so feel your pain, i have incurable heart disease, that is super rare on home care cuz hubby of 32 yrs didnt want a disablefd wife & was cheating on line & moved her to his home state by mommy wis, he has nothung to do w/ kids or grandbaby i pray for u & if can find u again check on u,it tough, i lost all my friends, u name it* sheri god bless u honey!

Jan 10Reply

chrisseyo @shoret411 Renee, wow! Thank you for this informative post. I am so sorry you have to suffer like this.

Jan 23Reply

theresakwade22 Prayers!! I have several rare illnesses, addisons being one of the worst!! I'll keep you in my thoughts! 😊😘

Jan 23Reply

astyleaddict I'm so sorry you have to go through this. I myself suffer from a form of Lupus called Dermatomyositis. My body thinks there is I'm sick and produces extra antibodies to make me better but really it ends up attacking my own muscle &tissue. So I know how it feels to be in pain every day. It's been going on for over 10 years. I hope some how you get better soon. Lots of love xoxo

Mar 12Reply

shoret411 @astyleaddict thank you! Sorry you're going through the same as well. I have lots of symptoms of Lupus but it hasn't shown up yet.

Mar 14Reply

astyleaddict @shoret411 well I hope you get better soon

Mar 14Reply

astyleaddict Sorry phone got taken mid comment by my one year old. I do hope you get better ... I know how one health issue will move into others. Keep me posted. I'll keep you in my prayers

Mar 14Reply

dzlosey1900 @shoret411 Hi, I'm Zina. I have gastroparesis too (among other things!) Since 2001. I am going up to Seattle tomorrow to have them increase the gastric pacemaker I have. I see you have a lot of support, but if you would like to chat that would be nice. Take care....dzlosey1900

Apr 25Reply

shoret411 @dzlosey1900 good luck!

Apr 25Reply

dzlosey1900 @shoret411 Thank you so much! I'm a little nervous. I think something might be wrong with my wires. Thank you for responding...it really means a lot!

Apr 25Reply

yaskween Thinking of you❤️

May 05Reply

sonpaises @shoret411 So sorry to see this and praying for you. 🙏🏻😔💕

May 15Reply

christiansamson Just so you know, you are not alone! I also have GP.. and understand the pain and suffering that goes along with it. I started something called Shakeology, simply for the nutrients and vitamins. And I have been on it for almost 4 months now and it has greatly increased my digestive problems and my pain as well. I also have changed the way I eat, I eat tiny meals every 4 to 6 hrs. and that works for me also. Prior to all of the changes & my diagnosis,

Sep 09Reply

christiansamson I had ended up in the e.r multiple times and thought that I was having a heart attack but the pain was in the wrong place!!! It was so horrible, but I really hope that everything works out for you and maybe what I have shared helps you a little bit. My thoughts and prayers are with you!!😉❤ Christian

Sep 09Reply

evelyn_b @shoret411 My heart goes out to you. It also gives me comfort, to know I'm not alone. I am 22, and have struggled with tons of health issues since I was a little girl. I've been to over 10 different doctors in my life and no real diagnosis. Until recently! We finally got a neurologist to run a bunch of tests and found a cyst in my spine. Which is why it has been so hard for me to walk.

Oct 29Reply

evelyn_b @shoret411 I also have histamine intolerance and stomach pain/bloating etc despite eating a very strict healthy diet. I have an amazing husband I have been married to for over 3 years. He makes me food, cleans the house, carries me to the bathroom- EVERYTHING. All the while working a full time job.

Oct 29Reply

evelyn_b @shoret411 There are men out there. Don't settle for anyone less! Wait for one who loves you for who you are. I totally understand how mentally, physically, emotionally draining it is. It is also SO HARD to make and keep friends cause my brain doesn't work normally and it's hard to have a conversation. And then people just don't understand. It gets lonely. Hang in there, you are loved so, so much. Praying for healing for us both! ❤️❤️❤️

Oct 29Reply

evelyn_b @shoret411 And I totally get the feeling of 'I didn't know this was how my life would be'. I had so many dreams and now it feels like they will never come true. But I know God can make them happen and I'm believing they will!!

Oct 29Reply

redbirdboutique @shoret411, Oh my goodness! I have gastroperises too! I had it from 2013 to 2015 and at my worse weighed 91 pounds (I'm 5'5). In 2015 I had a spontaneous remission which lasted two years and then BAM, a few days ago it came back with a vengeance. I have Lyme disease which effects the central nervous system (and every other system of the body).

Feb 16Reply

redbirdboutique @shoret411 In my case the gastroperises is caused by vagus nerve dysfunction/paralysis. I have lots of other health issues but when the gastroperises hits I CAN NOT FUNCTION.

Feb 16Reply

redbirdboutique @shoret411 I know you know. On the bright side I'm so thankful that I found Poshmark as it's something I can do while largely housebound. I enjoy it so much and it takes my mind off of my illnesses. Anways, thank you so much for sharing your story, I pray that you have only the best and brightest days ahead ❤

Feb 16Reply

shoret411 @redbirdboutique I hope you are doing well! I just got out of the hospital from have my colon removed & had lots of complications. If you aren't on the FB group Gpact you should join, lots of great support!

Feb 17Reply

guzel85 sending prayers your way❤

Mar 07Reply

frankiekeane So sorry to hear this...just reading all of the posts is a blessing you have so many people you haven't met yet that care about you...you've just added one more 😊you will be in my prayers...it sounds like a common thing to say, but I've seen what it can do.. you are very brave & inspiring---and just by your presence, are teaching so many people so many things...biggest hug and sending love & light your way.

Mar 24Reply

rondee1 I've heard of someone that has it. I'm so sorry for what you are going through. I live w pain 24/7 for a totally non related reason and if I could wish for one thing, other than the obvious ones, it would be a pain free day. I can't remember one. I wish you comfort and a pain free day.

Mar 27Reply

djmflygirlshop Hello. I just read your post. I'm sorry. I understand you want to me out there living your life. I too have been through many things and I'm still going through them and not understanding why? God is Good! I will be praying for you. God has great things ahead of you. Also, you are making this Illness/Disease an awareness for many people. You are making a huge difference!!! Have a wonderful day. I'm glad to have read your post!!! Thank you. DEB😎

May 20Reply

amazon211 Hi There, Its fine if you're not interested in buying another Posher's products, but leaving comments to discourage others from buying is really not necessary. I'm sorry that you don't like my products, but I am an honest and hardworking Posher - and you seem to be too.

Dec 07Reply

amazon211 I'm sorry my products are not a good fit for you, but please don't foster negativity. Thank you. I completely understand gastroparesis and this sentiment more than you think. You can never judge a book by its cover. That's why its important to be positive and support each other. Especially in advocating for invisible disabilities. Thanks.

Dec 07Reply

midwestclosets I have gastroparesis also- in fact my whole GI tract is paralyzed and starting TPN next month :/ I feel your pain!

Feb 19Reply

shoret411 @midwestclosets I’m so sorry!!!! Hopefully it’s not permanent!!! I have a good friend on TPN and she’s able to eat little amounts sometimes. Are you in the Facebook G-Pact groups? They offer wonderful support and are great for asking questions!

Feb 27Reply

alinkap I hope God heals and restores your health like never before! So sorry to hear that you're going through this.

Jun 19Reply

shoret411 @alinkap thank you! 💜

Jun 21Reply

wildfire_rose @shoret411 I so feel for you ♥️ I have several chronic illnesses, Lyme, Fibromyalgia, Epilepsy, Chronic Fatigue Syndrome. It is absolutely horrible to live with chronic issues that never go away 😥

Jul 26Reply

chanel57 Hi Renee!❤️ Thank you so much for sharing your diagnosis of gastroparesis! I was diagnosed with gastroparesis nearly 6 years ago thanks to the stomach emptying test that was performed and mine took over 20 hours to empty! Since then I have been hospitalized on numerous occasions for not been able to keep food down, not being able to eat, and being diagnosed with metabolic acidosis the last time I was in the hospital for nearly a month!

Apr 29Reply

chanel57 You are exactly right-the pain is 24/7 but on top of the gastroparesis I also have Fibromyalgia and Rheumatoid Arthritis that requires monthly infusions. I too also take narcotic pain medication just to make it through the day. The fatigue is unbelievable and to add the fatigue from fibromyalgia and RA- I am absolutely exhausted by the end of the work week. But as some of the previous ladies have commented, you have to create a new normal and live for the now and the future or you will

Apr 29Reply

chanel57 get stuck living in the past. I have to be thankful for what I am still able to do even if every morning I wake up in pain and go to sleep in pain. Some days I have to use a cane. My GI doctor did recommend an antibiotic (I had to take it for my Roscae anyways) and it has vastly improved my gastroparesis symptoms- the antibiotic was Doxcycline 50mg. I wish you the best! Stay strong and remember there are a lot more good days than bad days!❤️

Apr 29Reply

mommyof52004 I am sorry you are going threw this. I am dealing with the same thing myself . I have been living in an iv since 2015 I have been on transplant since then. I know exactly what you are dealing with.

Jun 23Reply

thread_vault 💕 it's amazing how positive and kind of a person you are! you have a heart of gold! hang in there!!!! 💕

Nov 05Reply

corin1965 @shoret411 Dear Renee, I wish you relief from your condition. Never give up. There are always new treatments and possibilities. I don't know if you have tried acupuncture. Also, Anise & Chamomile tea is wonderful for bloating and stomach issues. I had a Posh friend Josie who lived with this illness.

Aug 13Reply

corin1965 @shoret411 How are you feeling after the last surgery? I truly hope you are in less pain and having better quality of life. 🙏🏻🩷

Aug 13Reply

shoret411 @corin1965 unfortunately there are no cures for any of my illnesses. I have tried almost everything possible. I’m currently on IVIg as last resort (immunotherapy) I tried acupuncture years ago and didn’t work and I’m way beyond anything like that at this point. I’m not sure which surgery you’re talking about? I’ve had several and didn’t write about them?

Aug 17Reply