Fibromyalgia Awareness Day is May 12!

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😔Pain and Suffering Never Looked So Good! Fibromyalgia, Lupus & Chronic Fatigue (and other Invisible Illnesses) are very painful and very real!😣Together, with your compassion and support...we have HOPE!💕 Karen, @flutter_buys has long sleeved, Fibromyalgia Warrior Tees Available in her GREAT closet! Check it out! I have one &💜it!

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431 Comments

sassysuzzy Who knew? It has it's own day now?? I have suffered w this disease since 1989! Praying for a cure! @wenrella

Apr 27Reply

abstractdreams @sassysuzzy : I'm happy that there's more awareness now than there was when I was diagnosed 35+ years ago. 🌺 I am also praying for a cure! 👍😘 @wenrella

Apr 27Reply

ek682 @linmp1031 praying for cure💞😘💞 I have Crohns & chronic fatigue as well... Definitely need support & awareness💜stay strong💜

Apr 27Reply

abstractdreams @ek682 : I'm so sorry hon. Feel free to borrow & share in your closet. 👍💋

Apr 27Reply

ek682 @linmp1031 thanks💘😍💘

Apr 27Reply

abstractdreams @ek682 : 👍💋

Apr 28Reply

ublookn I didn't know about this either...have had both for 23 years. It's a PAINFUL, PAINFUL DISEASE to live with. 🙏

Apr 28Reply

abstractdreams @ublookn : Yes, they are! 👎

Apr 29Reply

riverflo19 @linmp1031 🎀😔 oh Hun I'm so sorry , my prayers are with you as we'll. I'm on lyrica bc my joints swell and get stiff with tons of pain but I have MS I'm not sure if there close in that way idk anymore 😔

Apr 29Reply

abstractdreams @riverflo19: They are close, they're both auto-immune related. I know the drug scientist who developed Lyrica. I take Gabapentin (from which Lyrica was made) for Lupus & Fibro. It works! I'm not perfect or completely pain free, but I am functional! I'll take it!

Apr 29Reply

riverflo19 @linmp1031 wow you do? Tell him to have it go generic jk 😊 it works wonders for me like u said if it's something it's better then nothing I can function better to I'm not flicking everyone off I couldn't get my middle fingers to go down and bend so embarrassing !!😊

Apr 29Reply

abstractdreams @riverflo19: HA! I flip people off (in my head) all the time! The drug manufacturer's have a certain number of years to make $$$, then a drug goes generic & all the drug companies can make it. You should ask your Dr if you can't take Gabapentin too (it's generic Neurontin).

Apr 29Reply

southernstyle88 @linmp1031 Hey Linda, I didn't know you suffered with Fibro also. I also take Lyrica. My worst days (Overcast & rainy days) UGH!! Those are stay in bed days for sure. Can't move nor do I want to move except to get more cover or blankets to cover up with on those days! Oh & cold days Eesh!!!! @wenrella I know Wendy also. We've had numerous convos on the phone. I love her too pieces! Miss hearing from you Wendy

May 01Reply

abstractdreams @sherry8888 : Yeah, I have Lupus & Fibro. I take Gabapentin (generic Neurontin), that's the drug that Lyrica is made from. I know the Phizer drug scientist who made both. He called Lyrica "son of Neurontin" (before the drug was named) & used to call me "daughter of Neurontin." Lol! If you do well on it, Gabapentin is WAY cheaper! It's a chilly, rainy day in Mi & I feel like crap💩! I'm here if/when you need to vent...I've been doing this for 30+ years! I'm practically a pro! 👍

May 01Reply

kristikreations @jakeamom12

May 01Reply

abstractdreams @jakedanner : Thx for sharing!👍 Are you a Fibro Girl?😖

May 02Reply

jakedanner @linmp1031 No but I know several who are. Got to find a cure.

May 02Reply

abstractdreams @jakedanner : For sure!! 👍💋

May 02Reply

mollyanne94 I will be 20 in September and I have had a constant migraine type thing since I was 11 or 12. I was told by one neurologist that it could be fibromyalgia but they didn't want to rule anything out because fibromyalgia is a catch all when they don't know what is going on. I also have nerve damage from a spinal tap. That keeps getting worse. I hardly sleep due to my nerves. No neurologist or other doctor has been able to figure out. Nobody understands what it's like to live with constant extreme pain. I hate taking pain meds because I was addicted at a young age and don't want to go back to that. I have had 2 neurologist that didn't run any tests and looked at me like I was crazy. I finally have one that doesn't. It's worth the 2 hour drive. I just wish it would go away and never come back

May 03Reply

dikacie Hello ladies. . I was diagnosed with Lupus in the early 80s my son was born in 86 Lupus wss basically in remission until 2010 I had a blood clot in my leg and the Hemotolgist said the Lupus was back and it surely is. The ARTHRITIS Dr says he thinks its Fibro... because my ANA test is all over the board. Without watching my signs. .. but he keeps me on Plaquenill a drug use for Lupud. What is bothering me so much now is. I have 3 IMPINGED SHOULDERS they hurt all the time. But about 6 months ago they started burning snd feeling like pins n needles on the back sides of my arms. It has gotten so bad it goes down to my wrist. But it feels like someone is SCRAPING my muscle ( what's left of them) off with a knife. I'm on s very mild pain reliver. Finally going to see s pain management dr. But I want to know what's wrong. Does anyone have these symptoms. Thanks I'm allergic to most pain pills on a fixefd6 income so I been taking mild pain reliver...

May 04Reply

abstractdreams @dikacie: I have SLE & Fibro and do have different kinds of chronic pain, but not these specific symptoms. I was diagnosed in the early 80's, tho I'd had symptoms most of my life. After being on narcotics for most of my adult life, I'm at a place where I can take 1 or 2 Tramadol a day & function with that level of pain. Have you tried Acupuncture or Electric Stim (Tens unit or H-waves)? Both work really well for me!!

May 04Reply

dikacie Tramadol is the only thing I can take and with what I have going on with my shoulders ( right next to being torn rotater cuffs) and this crazy burn and muscle stuff. My dr gives me 4 a day. I take 2 st bedtime and 2 more during the night. I'm suffering from sleep deprivation. I take care of my mom who has Alzheimers sh has a adopted daughter wjo is 19 snd is mentally challenged. im now her gaurdian. And my father in another household.

May 04Reply

pursenut Welcome to my world! I too have Fibromyalgia! It's awful! VERY PAINFUL AND VERY FRUSTRATING! Hardest part? Looking like you should feel fine and feeling like you have horrible case of flu all the time! No understanding or help from husband. Aaaaaagh!

May 04Reply

pursenut Can I steal your sign?

May 04Reply

sammy @linmp1031 I didn't know. I'm right there with u, Wenrella and everyone else. Do u take any of the meds they give? Hope u feel better. Thanks for letting me know this was the day!!! 💓💓💓

May 13Reply

abstractdreams @sammy : I've taken Gapentin (generic Neurontin), the drug that Lyrica is derived from. I have Lupus too & spent 2 decades or more on serious narcotics... I got divorced (from the Lord of Darkness) in 2005 & it's like I'm cured! I'm on very little maintenance meds!!

May 13Reply

sammy @linmp1031 wow. Do u think it was a lot of stress causing the pain from the Dark one? I take GABA but it only works well for less than a week. I like it, I wish it lasted the whole month. I'm sorry u had to do the narcotic route for so long. Was it Oxy? That will take the pain away but if ur lucky not kill u. I won't go near it after the first time!!!! I do take a muscle relaxer that helps when I'm really bad. How is the pain now? Best of luck hon!!! 💓💓💓💓

May 13Reply

abstractdreams @pursenut : Brenda, I'm sorry to hear that, I didn't know. Of course you may borrow this. Posh is all about "sharing." 👍💋

May 13Reply

abstractdreams @sammy : I was on Oxy for a short time, it didn't help the pain & was making me crazy! But the upside was I was motivated to get off! It was a horrible detox, even tho it was inpatient! I never want to do that again!! 👎 These types of illness are very impacted by stress. And it's not like my life is stress free now, Life is stressful. But I can deal with whatever comes my way!!👍

May 13Reply

abstractdreams @ej135 : It can be a long, difficult road, that's for sure! Thx very much for the input, that's why I posted this...

May 13Reply

abstractdreams @sammy : Did u know that GABA is the "stay asleep" hormone that is produced by the brain. It's marketed for relaxation purposes. I fell at work & broke several bones, needed 2, possibly 3 surgeries. I'm in PT for use of my left arm. It's rough! But I gotta do it!! 👍

May 13Reply

sammy @linmp1031 really. Sorry. It does help me sleep but just makes me a bit spacey the first few days. I won't drive on it but when it works I don't get tired. Guess it works differently on every one like a lo of meds. The spaceyness the first few day I'm used to. at least I get some relieve. I just talk very fast when it works. Not so bad and it's not addictive at all!

May 14Reply

abstractdreams @sammy : I know the dosing suggestion of brand that I buy is 1 capsule, 3-4 times a day & when I asked about it, they said it's used like an herbal valium. I said "I don't want to be medicated, 👎 I just want to sleep!" I took one at bedtime & one at times of extreme stress, NOT 3-4 times a day! Now I can sleep without it, most nights!! You're RIGHT, it's not addictive, because it's a natural hormone that your brain makes!!👍

May 14Reply

sammy @linmp1031 how areu feeling . Lyrica. Does t work for me. GABA works for only about a week. U fortunately Some works great but it has become addictive so I'm trying to take less. It wears off in several hours. But I still need it. I hope all of u feel better. I feel the meds trump the excruciating pain. My bro wants me to go somewhere but it's too much and too expenive. Trying to do it myself . I have anxiety too and take klonopin 3 times a day but just most of the time just keeps me from major anxiety attacks. Good luck all! 💓💓💓

May 14Reply

abstractdreams @sammy : You take GABA for sleep, right? You can alter the dose if 1 cap stops working. There are LOTS of other things you can do (or stop doing) to increase the odds of a good nights sleep. And just to be clear, GABA & Gabapetin are not the same. Gabapentin is the drug that Lyrica is derived from. It's WAY cheaper than Lyrica, because it's generic & would have the same results.👍🎉

May 15Reply

sammy @linmp1031 hi sweetie. No, I take Gabapentin and Seroquil for sleep. That usually knocks me out. Lyrica doesn't work on me. I also have a muscle relaxer for my back . No pain killers or narcotics do its one day at a time. What are u on now if anything? My doc is pretty good giving me enough but not too much. I have Lidocaine patches but they very low dosage. It's like a placebo occasionally for me. Doesn't do more than the OTC. There's a new one with a stimulant like tens in it I should try. Maybe CVS has it. It's over 100 today do I'm staying in, wrapping some sales and watching the weather to make sure the fires are over!! U take care love. Ttyl! 💓💓💓

May 15Reply

abstractdreams @sammy : It's too bad, but there's no cure and no pill that works for everyone. I think I mentioned I was a zombie, on lots of serious narcotics for 20+ years! I have no desire to go there again after getting off & getting my life back! I'm able to deal taking 1-2 Tramadol a day! 👍 I also do as much alt medicine as I can, massage & acupuncture being my go-to's!

May 15Reply

sammy @linmp1031 I'm very proud of u for kicking the hard stuff. It's sooooo hard and u just don't wanna be in pain but u don't wanna be a zombie either. Did u do it yourself or go somewhere. Right, different things work for different pple. I feel I'm on moderation. Even if zi get spacey from the Gabapentin, I know what I'm doing. I just kinda walk around a lot looking for things. It's done working for the month. It's a tough life as u know. I take it one day at a time. Right now just worried about the fires. I'm ten minutes away. I have no where to go and thousands of dollars of clothing I have and am selling . Glued to the TV. No gas in my car I'm do broke!! Hope u are feeling well my friend!

May 15Reply

tracyrains I have had this for over 10 years now and it sucks :-(

May 16Reply

abstractdreams @tracyrains : Indeed it does!👎 I posted this as an outlet for Fibro-Girls to vent, support & share survival strategies with each other!!

May 16Reply

tracyrains @linmp1031 that's awesome. I know it helps to hear and talk to other fibro gals

May 16Reply

abstractdreams @sammy : I don't think Gabapentin should be making you feel that way...I'd call my doc!👍 I ran support & education in my county for years & I know we used to call that Fibro-fog!!😳Ate you in CA.? I can't imagine. I'll say a prayer for you!🙏 I'm ok. I'm affected a lot by changes in barometric pressure, and I live in MI where it's 85 degrees one day (Tues) and 49 the next!! It's Thurs & it got all the way up to 55 today, when we should be in the mid 70's this time of year. So, I'm having trouble getting to sleep, I'm hurtin'.😖

May 16Reply

goldenpolkadot @linmp1031 i have good frnd with this as well! Praying for u and all affected🙏💕💞💕

May 24Reply

abstractdreams @partymk999 : Thx so much! We'll take all the prayers, good vibes, and kind thoughts we can get!👍💋

May 24Reply

xoxo73 Since 2006-still fighting!!!!

May 26Reply

abstractdreams @xoxo73 : I'm sorry hon, it can be a long, bumpy...difficult road.👎Feel free to vent or share success stories here!👍💋

May 26Reply

jrtharcrow hey warrior loves, I have primary cns sle lupus+ 12 other related autoimmune diseases. also happen to have a younger sister with it too. we belong to an awesome fb group no drama , all love , info, support and private.......it's called spoonies the icon when you look for it has a b Greg background with sunglasses .......not sure of that connection but come join and get to know so e awesome warriors.

May 28Reply

abstractdreams @jrtharcrow : I'm on fb, and I find LOTS of Spoonie groups, but I don't think I'm locating yours. What's the profile pic?

May 28Reply

jrtharcrow it's a grey back ground with a pair of sunglasses. I hope,u find it. if not look me up Jennifer Tobin-turner my profile pic has my daughter and her friend. a blond and red-head

May 29Reply

abstractdreams @jrtharcrow : I'll check again tomorrow!👍

May 29Reply

xoxo73 Thank you!!! Strength!!!

May 29Reply

abstractdreams @xoxo73 : Wishing you strength as well. 💕Learning to put my head down and one foot in front of the other has served me well for the 30+ years that I've been on this road!👍When often, a good day is just not as bad as a bad day.🌺

May 29Reply

xoxo73 Oh thank you sweet one! Some days are better than others, today happens to be a painful day so far. I'm in FL and the heat sometimes affects me more than the cold weather(then again "cold" here is undoubtedly not so cold compared to up north etc!!;) I hope you have a peaceful productive day! Thirty years,wow. I'm 40 and my mom believes I suffered with it as a child. Back then there was no label. I wish I could find a really great Dr. Many just want to highly medicate and I have a little boy that I must always watch out for...he*** keeps me going,pain or not he is my reason to keep pushing through each day:)

May 29Reply

xoxo73 Do you have a support group on FB? I would love to start one. So many people don't understand and just think its similar to having a mild "headache" etc. I recently sepated from my former fiancé because of his incapabilty to understand how much it affects us that have it. I also use a tens machine, which helps bit I wish I had one that radiated the nerve stimulation through my lower body where the pain is quite severe! My friend from high school was just diagnosed with lupus. I am trying to research for her as I need her to make sure the Dr is correct. Second opinions necessary. I'm actually trying to sell more on here so that I can get her a plane ticket to come to see a specialist in Orlando;) she lives in a very small town and doesn't have many options. If you know much about lupus and are able to direct me anyplace for guidance please do let me know!!!! Thanks again, you're very sweet! Xo

May 29Reply

abstractdreams @xoxo73: I DO know about Lupus, actually. I ran support/education in my county for many years, until I became too ill myself. You or friend can check with the local chapter of the Lupus Foundation of America or the Auto-Immune Disorders for a great deal of info (they can be accessed online as well! I was diagnosed when there wasn't much known except...I would not live long (5 yrs from diagnosis was the medical opinion at the time)...WRONG! The good news is if a person has Lupus (without direct major organ involvement) they have a normal life expectancy! The bad news is they feel like shite! The big problem with Western medicine is it's limitations. Surgeons operate, Orthopedic docs can set bones, Internal medicine docs medicate...it's all they have in their bag of tricks. You do have the right to research, question, evaluate and say NO to the drugs. I had learned to live with the illness (when, you're right...there was no name for it), but often, I could not tolerate the way many of the meds make me feel!!

May 29Reply

abstractdreams @la_beadbouteek : Do you have an invisible illness hon?

Jun 03Reply

la_beadbouteek Aloha my mother and my two aunties my two cousins all have fibro , muscular dystrophy etc auto immune disease are in our blood :( this is a cool listing I had to save it into my likes to show my family there not alone :)

Jun 03Reply

abstractdreams @@la_beadbouteek : They are not alone.💕Feel free to borrow or if the ladies are on Posh, send them our way. I hope you're well.🌺

Jun 03Reply

la_beadbouteek Absolutely :) thank you ! Take care :)

Jun 03Reply

eliteapplause @linmp1031 I have had fibro since 1985! I got it after a car wreck! Back then doctors would get mad at me because they didn't know what it was. Many years of this terrible disease.

Jun 04Reply

abstractdreams @mary447 : You said it sister! I've heard "hypochondriac, big baby, whiner..." the list goes on & on! I'm sure you know! If a dr got mad...it was time to find a new one! Right?👍

Jun 04Reply

eliteapplause @linmp1031 I mean several doctors got mad. It was like they three the book at me!!!💝

Jun 04Reply

anoliver Oh my gosh, this is AMAZING! I've had CFS and Fibro since I was 11 (I'm 33 now). It's awful, I gave up trying to explain to people my health issues, most just don't get it😞 It took 10 years and one amazing doctor to finally get diagnosed and some help. I grew up being told by every dr I saw that I was just lazy or it was all in my head- took a toll on me, I thought I was a pathetic, crazy kid. Thank goodness I had an amazing family❤️ I spent about 5 years in and out of hospitals so didn't really have many friends or an active childhood. I'm doing better now but some days are still super tough- I do a lot of praying and praising God, He makes all the difference🙏 You and everyone else who suffers are in my prayers! I will have to try the med you recommended, right now I'm doing all natural except for Tramadol, and to be honest, it's just not enough😞 I have a little miracle, my sweet 3 yr old girl, who I don't want to miss out on because I can't function. She is everything to me (well my hubby is a favorite of mine too☺️) and I want her to have an amazing childhood❤️ My body makes NO hormones so scientifically, I can't have children. But I prayed for 7 years for her and God is SO GOOD! The doctor's are STILL scratching their heads and can't explain it👏👏 They tell me she shouldn't exist or at the very least have major disfiguration and disabilities- but besides bad eyesight she is perfect😊❤️ Sorry I kinda got off subject!😜 Anyway, it's sooo great to feel you're not alone- thank you for sharing your story🙏🙏 Please stop by to chat any time!!😘

Jun 11Reply

abstractdreams @anoliver : Hi Angela, so happy that you stopped by & noticed Fibro Girl, Princess of Strength & Perseverance!!👍 Gabapentin is the drug that Lyrica is derived from, it's way less expensive because it's generic & is pretty benign! Give it a shot soon, you don't want to miss any more of your own life...or your lil' cutie patooties!🌺On my way to check out & share your closet!💋

Jun 11Reply

anoliver Will do! I'm meeting with my specialist next month and will bring it up! Thank you so much!👍❤️😘

Jun 11Reply

gjs42 Wow as usual a day late and u know lol. I also have this dreadful illness!! I thank God everyday for lyrica is has been a real life saver for me. Even with the extra 40 lbs. 😃 very happy there's an awareness day now. Prayers and happy thoughts to all of u who suffer with fibro!!

Jun 15Reply

abstractdreams @gjs42 : I'm always sorry to hear that anyone has either Lupus or Fibro, but I'm happy that you found us here!💕Feel free to vent, ask a question or offer tips or advice!👍I know the drug scientist who developed Neurontin & Lyrica (which is sort of son of Neurontin) & I've taken Gabapentin (the generic) for years! Same results...way cheaper! 👏

Jun 15Reply

abstractdreams Hi Lyn, do you have chronic health issues?🌺

Jun 15Reply

abstractdreams @lynemma : 👆👆👆👆👆

Jun 15Reply

cdj69 Hi , just reading some of your comments, how did you get off the narcotics, my son takes them for arthritis pain, but he needs and wants to get off, without the withdrawal pain, how did you do it?

Jun 15Reply

abstractdreams @lynemma : If he's been on any significant dose for awhile, a dr should do inpatient detox. That's how I did it, with detox meds & it was pretty bad, but not as bad as doing it on my own! If he wants it...that's good! I still have pain, but I take an occasional Tramadol & have my life back! That was the kicker for me!! Does he have a good Rhuematologist?

Jun 15Reply

abstractdreams @lynemma : wrong tag. sorry.💋

Jun 15Reply

abstractdreams @gjs42 : mis-tagged another posher. read 2 posts up.👆👆👆

Jun 15Reply

abstractdreams @mommybekah : Hi hon, your profile pic is adorable!! Do you have a chronic illness?

Jun 15Reply

luvbucs28 💟💟💟💟💟👊

Jun 16Reply

abstractdreams @luvbucs28 : Hi hon, thx for liking. Are you ill?

Jun 16Reply

abstractdreams @ruthieb12 : A lot of the Auto-Immune diseases are related and often misdiagnosed several times before getting it right. Why did you stop the meds?

Jun 16Reply

abstractdreams @ruthieb12 : I totally get that hon! Lupus pts are notorious for monitoring/changing our meds! A good doc is CRITICAL for any chronic illness...you're a team! They have a medical degree & you have a degree in YOU! There are several sites that rate/grade doctors & tell you all about them good & bad, Health Grades even includes pt reviews!!

Jun 16Reply

abstractdreams @ruthieb12 : Good Luck, don't get discouraged...it's not easy. Remember you can say NO to meds you don't want. Give new doc as detailed a description of your health as you can, even stuff you think may not be realted.👍 Keep me posted & lmk if I can assist with info/virtual hugs!💋

Jun 16Reply

luvbucs28 I've been through a lot , I had to learn how to walk again after an infection destroyed my hip ,& a very painful blood clot , but never Cancer treatments , are you doping well ?

Jun 16Reply

luvbucs28 Fibromyalgia ,u know that's painful

Jun 16Reply

abstractdreams @luvbucs28 : I'm so sorry. I have to have a third (unrelated) surgery on my arm later this month or next, but aside from that, I'm doing relatively well. I've only had oral chemo (Methotrexate) for Lupus, never any other Cancer treatment.

Jun 16Reply

luvbucs28 I'm So sorry , poor baby , I hope you have a lot of emotional support , prayers of comfort & healing coming your way luv🌹

Jun 16Reply

abstractdreams @luvbucs28 : Thx hon, but I've been ill most of my life...I never had healthy & got kicked in tbe teeth by this, I was happy that they finally figured out wth it WAS!! 👍After divorcing the Lord of Darkness in 2005, I'm WAY better health wise & manage on very little medication. Sending prayers your way as well!💋

Jun 16Reply

luvbucs28 Wonderful !!!' It's half the battle once you've gotten the diagnosis , Praise God for that 💕💟

Jun 16Reply

luvbucs28 Feel better sweetie 🙏🙏

Jun 16Reply

abstractdreams @luvbucs28 : You said it sista!! Amen!💋

Jun 16Reply

gjs42 I'm confused😁 miss tagged? Did u want to send me a message ? Or no

Jun 17Reply

abstractdreams @gjs42 : Yes hon, I responded to your question then accidentally tagged someone else. Go back 1 day, it's my first message.😊

Jun 17Reply

abstractdreams @mommybekah : Np hon, welcome & feel free to vent or comment here. XO

Jun 17Reply

andrea_27s @rmarlar333

Jun 18Reply

abstractdreams @justjessi :👍

Jul 03Reply

abstractdreams @ridinghood13 : Thx so much! Stop by any time to vent, offer support or just reassure yourself (on a good day or a bad one) that you're not alone.👍🌺

Jul 05Reply

abstractdreams @ridinghood13 : I will for sure!👍💕

Jul 05Reply

lotus1234 @here4looks77👍👍👍👠👠

Jul 09Reply

lotus1234 My sister @here4looks77 is currently in the Pain Management Program at the famed Rehabilitation Institute of Chicago for 2 days a week all of July 2014. Do some research ladies!!!! And don't give up or just lay back and take it!!!!Madonna's been living and working in pain for many years!!! She refuses to stop working. I don't know how she does it every day. But she says as her mind is beginning to understand the pain triggers she can either beat it or diminish the affect of pain!!!! RIC is also working with her to get her off of some of her drugs. Now that's some dangerous stuff!!!!......Cymbalta, clonopin, meloxicam, seroquell, neurontin!!!!!

Jul 09Reply

abstractdreams @lotus1234 : Thx for commenting & tagging your sis! It's a fact that attitude makes a HUGE difference, our brains are very powerful. I've managed to do exactly what your sister's attempting. I would rather have some amount if pain, but have a life than be an overmedicated (and still in pain) zombie!! I also am a big advocate for no narcotics...that's my personal preference!!👍FYI: Neurontin is not a narcotic or addictive & makes a major difference in pain-related auto-immune illness.

Jul 09Reply

lifeinstiches Coming back to this one too sorry really not meds if I spell wrong I just woke up & no coffees and me don't mix

Jul 09Reply

lynnk4 @linmp1031 Hi fellow Fibro friends! Just popping in to assure myself that I am not alone and to let you all know that I will be sending positive thoughts and prayers for a good day, even if it's only for a day! Love this thread, and I bet I am not the only one who reads in the shadows! XO

Jul 09Reply

abstractdreams @lynnk4 : I'm sure that you're not the only one, but I'm glad you came out of the shadows Lynn.👍💋

Jul 09Reply

eliteapplause @linmp1031 I'm a fibro girl too! People just don't understand! They think you are lazy! Sick of it! Thanks for letting me vent as I am really hurting today bc I overdid it yesterday(shopping)...💝💝💝

Jul 10Reply

abstractdreams @mary447 : Stop by any time.💋Be kind to yourself today Mary, I'm not very good at the moderation thing either.💕

Jul 10Reply

eliteapplause @linmp1031 Thanks! I need your support!

Jul 10Reply

abstractdreams @lchouser : Thx Laura, Fibro ain't for sissies...that's for sure!💋

Jul 11Reply

abstractdreams @lchouser : 💋

Jul 11Reply

mixitup @sammy @supb are you two friends with this wonderful posher and know each other? You're all really wonderful people I'm glad to have found you 3 on posh.

Jul 11Reply

supb @mixitup @sammy no not rly. Let's change that. Linda & Shawn, I'm Rebekah. I have Fibro as well as a bunch of other fun stuff. I love this cartoon. Great idea. Btw @mixitup what is your name?

Jul 11Reply

mixitup @supb yeah :) you 3 are sweet as can be. Oh hubby chewed me out for posting my info on posh and dog pics. He said there could be guys on here to not talk too personal. I still need to add you on fb though but I lost your info to add you. I was telling @sammy I want to eventually start a private fb posh group for all friends and friends of friends. I just haven't made it yet so much going on. Personally I think @sammy should make it she has alot more creativity.

Jul 11Reply

mixitup @supb @sammy like if someone isn't feeling well post in the group and everyone can share like crazy for you while you take a few days a week whatever you need off while friends share for you. I know theirs days I just want to hybernate I'm sure most feel this way. Plus alert each other of updates parties everything posh while all being able to talk in the group privately. Only invite friends so theirs never stress or drama basically a cool group of poshers. That's my idea at least.

Jul 11Reply

mixitup @supb I replied and hubby asked if I'm on posh lol Yep that's why I forgot to eat dinner posh tastic

Jul 11Reply

supb @mixitup that's a great idea. I've been off work 7 yrs. And it's only been the last 2 that I keep having all these ideas. But i keep coming back to not enough energy to do it alone. Why can't I be the idea chick & someone else can implement them?

Jul 11Reply

mixitup @supb trust me I 100% agree with that. Although in my case I'm a bad planner. I get ideas but then I feel stressed or lost how to do them or I get headaches lots of those. Although this group Idea would be awesome.

Jul 11Reply

tazze Are you blogging on Fibromyalgia ? This is a awful and painful disease, not to mention invisible

Jul 13Reply

abstractdreams @taz

Jul 13Reply

abstractdreams I have had it (and Lupus) for 30+ years...it's tough.👎

Jul 13Reply

andrea_27s @rmarlar333 have you met this lovely lady, Aunt Rachael? 😊

Jul 14Reply

rmarlar333 @andrea_27s Yes ma'am I do indeed follow her... Awesome lady.

Jul 14Reply

nikongirlrocks I would love a private group to chat. I have a lot of venting to do...not to mention questions! Ughh.............fda <----my kitty said that lol.

Jul 16Reply

abstractdreams @nikongirlrocks : I'm working on starting a fb group, but due to all the complications & subsequent surgeries (3rd coming up on Monday), I haven't yet.

Jul 16Reply

zenmode Thanks @linmp1031 for bringing this to my attention!!!

Jul 16Reply

abstractdreams @mygenet : 💋

Jul 16Reply

neelug I didn't know there was a day! That's awesome. That minion looks about right...lol.

Jul 17Reply

abstractdreams @neelug : Right? I saw it today & had to post!

Jul 17Reply

jojobobolago Oh, do I get it. Not fibro, but chronic pancreatitis and the chronic pain that goes with it. I've been questioning something autoimmune also, due to symmetrical pain that I have. I have one autoimmune disease, hasimoto's and they say they typically come in pairs. Well see. I belong to several CP support groups on FB and there are many out there who also have Fibro, Lupus and Crohn's. We do share the same purple ribbon though!💜

Jul 20Reply

abstractdreams @jojobobolago : Welcome. If you read the comments, everyone here doesn't have Fibro, but we do have Chronic Pain in common. The Purple ribbon is shared by many different things (too many causes, not enough colors I guess). Stop by any time, tag me so I don't mss it.🌺

Jul 20Reply

zipper @linmp1031 How do the diagnose Fibro? I have been to doctors for migraines, I have IBS and they say can't do anything. Stress and fatigue with aching all over I feel like I have the flu about 4 to 5 of the 7 days a week. Cant do what I need to around the house and my Mother lives with me she is on dialysis! Wake up tired and mom goes to dialysis 3 days a week. A lot of times I just go lay on the bed and then get up and do something very frustrated. Wake up at night legs bother me. I need to ask doctor about a medication. What works the best?

Jul 21Reply

zipper @linmp1031 This all started years ago! I've had test for lupus. I was told when I was in high school I had RA after a spinal tap. And in the early 1980 with Chronic fatigue?

Jul 21Reply

abstractdreams @zipper : Hi Dianne. The problem with Auto-Immune diseases is there's no one size fits all. Everyone's symptoms are different & everyone responds to medication differently. No one magic pill. Stress plays a HUGE roll in these diseases!

Jul 21Reply

abstractdreams @zipper : My first diagnosis, after a bone marrow extraction was also RA. These diseases can take years (literally) for the docs to figure out. Sadly, internal medicine is still in the dark ages. I'm on my way to hospital for unrelated surgery now, but will be checking in asap. Be well.🌺

Jul 21Reply

zipper @linmp1031 I'm properly one of the most stressed out people in the world. I control a lot of the symptoms trying to tell myself it doesn't help to get stressed. But the fatigue is the worst. ❤️

Jul 21Reply

zipper @linmp1031 Take care and get better! It helps to talk and share with someone that understands.❤️😊

Jul 21Reply

lotus1234 @sammy read that the GABA only helped a short time for you, same for me! I just attended a pain management program at Rehab. Institute of Chgo Still working on adjusting meds, hopefully within the next 3-6 months as my family Doc, Psych Doc, and RIC specialists work together to come up w/ the right "concoction". I'd like to try the Gabapentin again in a different dose and maybe get rid of or reduce meloxicam, clonopin, Cymbalta, and Seroquell. Great experience at RIC! Look it up on-line. I will now be making regular follow-ups with their very astute Dr. Atchinson and his team: psychologist Dr Flores. PTs, bio-feedback specialists, relaxation and OT specialists, and a new experience with Feldenkrais movements! Amazing results! Good luck to us all!!!

Jul 27Reply

abstractdreams @lotus1234 : GABA is the 'stay asleep hormone released by the brain. One I was able to get good get good, consistent sleep, it broke that pain cycle. I divorced (the Lord of Darkness) and that made a BIG difference too.👍

Jul 27Reply

sammy @lotus1234 hi Colleen. At first, the GABA was working but I was super high and spacey from it. Then it only worked for a few days. Now it does nothing. As of now, I find the medical MJ to be the best, not perfect, solution. I've been poked, prodded, gone to good places and spent a small fortune, tests... So I'm sticking with this for as long as it works. I like the candies for pain the most but they cost so much!!!! I need to sell a bunch of things a week to keep affording it. I never was into it before but it's different now. I hope they don't actually legalize to the public. In Colorado, a lot of pple don't realize how expensive it is to buy legally. I saw a show all about it. Anyway, I need a candy now. Anyone, feel to write to me. Thxs girl!!! How are u today anyway? 🌴❤❤❤😱

Jul 27Reply

gothess @linmp1031 Oh my goodness... May 12th is my birthday & I have Fibro too.. could I possibly steal these??? :D @dikacie Your symptoms sound a lot like mine.. in addition to Fibro I also have a condition called RSD "Reflex Sympathetic Dystrophy" It commonly goes undiagnosed or misdiagnosed for years! It is worth Goggling it to see if your symptoms match. ~Blessings to each & every one of you Ladies... I have been dealing with Chronic pain since 1999.. I was bed ridden for 2yrs and I literally broke bones learning to walk again because all of my muscles atrophied. I am one a healthy dose of pain meds..but it is what made me functional once again...I thank God we live in an age of time where we have things that help us... I can't even imagine what people went through in the not too distant past.. Have a beautiful day Dear Friends!

Aug 01Reply

abstractdreams @gothess : Please feel free to borrow & stop by whenever you need an ear!

Aug 01Reply

jenavi Lots of prayers to this entire group!! May God pour His healing power over all ladies & gents here to gain back healthy lifestyles and be a testimonial to others about God's goodness & mercy, forgiveness and unconditional love for all of is!

Aug 02Reply

abstractdreams @jenavi : Thank you for the prayers & good wishes. Do you have a chronic illness Jeaneane?

Aug 02Reply

jenavi Oh I'm sorry if this is only for those sick. I don't have to be a part of this group but I do support a friend with it & have been by her side for 7 yrs through all her pain. I would stay on the ph til she needed me to just to vent or ask for immediate ph prayer n read healing scriptures over her. I'm sorry if this is solely for the sick. I can unlike without any probs. I do have another friend with lupus n have seen her go through chemo n meds in/out of hospital since middle school. Let me know dear. I know there are support groups for the support systems but my friend is not on posh so I may sell some of her items n would like to pass on more knowledge as she's tried natural supplements to help pain cuz she refuses to take addictive pain killers.

Aug 02Reply

abstractdreams @jenavi : No, you don't have to be ill, but I always ask. Some people find it difficult to volunteer the info, but will answer a question...thanks for supporting the chronically ill ladies in your life. Many have no other means of support.💕

Aug 02Reply

cdelp116 Hi Dear! I love your closet and I love this! I have suffered from this disease for 20 year's! It is crippling! And very real! I am a Christian woman and I put all my faith in the lord! Some days are bad, really bad..bed ridden, but I celebrate the good days and remember I WILL get better! I will pray for you and if you ever want to talk just text me sweetie! Blessings! Cheryl

Aug 08Reply

abstractdreams @cdelp116 : I've been ill with Lupus & Fibro for most of my life & you're right...it can be awful! Sometimes a good day is just not as bad as a bad day! But I think we cherish the good days more than others, because of the pain (I think that's a gift...the ability to relish the good, not the pain😖)! Stop by anytime. Stay strong & be well.💋

Aug 08Reply

curvygirls0811 @linmp1031 let's hear it for the fibro fighters!!

Aug 12Reply

abstractdreams @curvygirls0811 : would that include you?

Aug 12Reply

curvygirls0811 @linmp1031 it absolutely does include me! Diagnosed in '97. Just now being taken seriously! ;-) Lots of support out there if you know where to look! I'm glad you have PM to keep you engaged! It helps me a ton!

Aug 12Reply

mneitch @linmp1031 Hello to all my fellow Posh Fibromite's! Been fighting for decades. Trying some new treatments and medications and doing really well! Finally, after spending 3 years on my couch in a massive flare. Life is good again. Don't! Give! Up! 💖

Aug 13Reply

abstractdreams @mneitch : So true Melissa!! That's the reason I posted this! Stay well!👍💋

Aug 13Reply

justjessi @linmp1031 hello, love‼️ I saw you were looking for some jewelry with rocks for a gift. I would be happy to make a custom piece for you at a fantastically JazZy price‼️💜💜LMK 💋 #xojessi

Aug 17Reply

missidoll @linmp1031 Hooray, we got a day for awareness! I also had Ovarian Cancer, and we got our own Ribbon Color - Teal; I also have Lupus, IBS, Diverticulitis, A-Vascular Necrosis, along with many other illnesses. I have a great immune system, never get sick, just have BODYBREAKDOWN...LOL...Ya gotta laugh, or else I would be a basket case like I used to be. Laughter is the Best Medicine🌹✌️😎

Aug 18Reply

missidoll @mollyanne94 Hey hon, I have Sympathetic Neuropathy - sounds like your symptoms that can't be figured out!!🙀 4/12/1992, I slipped on a wet floor, and damaged the sympathetic nerve in my right knee. That nerve is the Pain Generator! It tells your brain that you are having all kinds of pain, like, cuts, bruises, bee stings, scalding burning, just hurts all the time with no let up! I wore shorts for 10 years, deformed my r leg, cuz they couldn't figure it out. The dr took out my bursar sac, didnt work; casted me from my hip to my ankle, and I almost went crazy, finally I got sent to The Mayo Clinic, and Dr. Peter Johnson told me what it was. It was a long road to there and from. I have a Neurostimulator (AKA Neuromodulator) in my spinal column that does help. In October last, I got my second one. If you want to talk about it tag me.❤️✌️😎

Aug 18Reply

mollyanne94 @missidoll that actually makes sense to me. I slipped at Niagara falls in the tunnels and hit my right knee. Had problems with it ever since but the knee doctor said he can't see anything wrong. My nerves are so random but have some constants. I have been told I have nerve damage from the spinal tap not closing correctly

Aug 18Reply

missidoll @mollyanne94 Molly, if you haven't already, ask your dr if you can try Neurontin, fo

Aug 18Reply

missidoll @mollyanne94 Sry abt tht, I'm always pressing post with my middle finger😹 Anyway, try small doses to see if it helps, then if it does, you'll have a better idea of what might be. A lot take Lyrica, and while it helped me to finally be able to wear long pants, I could not think straight; I'm talking no conversations because I couldn't strong words together! I've had 5 back operations, and have been on MSER & MSIR for about 10 yrs, and it's the only pain med that helps me; no Codine OxyContin, and I can't take anything with Tylenol-allergic. Gotta go help my husband. Where do you live? Is the weather a factor? ✌️😎

Aug 18Reply

mollyanne94 @missidoll neurotin didn't help on haven't found anything that does. Sleep meds don't even help me sleep. The 2 adult neurologists I've gone to treat me like I'm crazy and don't listen to what's going on. They just keep putting me in different depression meds that make me overly happy to where I sound sarcastic when I'm pissed. I went to my current one last week and waited 3 hours on a bad nerve day just to be argued with for maybe 10 minutes that what was going on right that moment with my body visibly shaking on one side wasn't a problem that needed to be focused on. I left in tears and in pain so bad. It's been decided we're finding me another in or around MS which is where I live. But yes my knee hurts when it rains.

Aug 18Reply

abstractdreams @mollyanne94 @missidoll : Sorry you're feeling so poorly, it sounds like it's time to find another Dr.! Gabapentin (Neurontin) works for many, many people, for pain and sleep (myself included)! The problem with these types of illnesses is they're very individual to each patient & all that Dr's have IS drugs...there's no magic pill. I and millions of other sufferers wish there was! I hope you find a new doc & some relief!👍💋

Aug 18Reply

missidoll @linmp1031 @mollyanne94 I have had severe agoraphobia and chronic depression my whole life (53), and severe anxiety since I was 16. Now I take 8mg Klonopin a day, oh, and I have Temperol Lobe Seizures, so I'm on Topomax; 2anti depressants; and 2 kinds of Seroquel-1 for moods during the day, and then at night a different kind for sleep. When I had Cancer, I had a partial hysterectomy (left my L ovary), but it can't take Estrogen because it raises my Cholestrol. Hence, the daytime Seroquel, and it does help! We should own the pharmacy at this point! Oh, and I take presc. Prilosec ever am! I used to take 3500mg Neurontin every day!! That was RIDICULOUS. I felt like I was walking about 1 ft in the air! Molly, you should find a good Pain Management Dr that will understand and work with you! Do you live close to Mayo Clinic? Or Cleveland Clinic? I know lots of places(years of research).🌹

Aug 19Reply

mollyanne94 @missidoll know any in or around MS?

Aug 19Reply

sammy @dikacie I'm so sorry (and for all including me). Did they rule out Shingles? I took Gabapentin and. Lyrica . The GABA worked for about a week but made me spacey. Now it doesn't work at all nor does Lyrica. I'm on to medical marijuana. It works very well. (depends on what state u live in). It's expensive but worth it. I mostly take these CBD candies and a cape pen. Not much smoking, depends. Good luck babe!! Feel better!

Aug 21Reply

sammy @linmp1031 👆I'm so sorry u have it because I literally feel ur pain. I'm on various things but I like the MJ. I've been on muscle relaxers so long they don't really work any more. Let me know if u come up with anything new and feel better. Much posh love. Are u going to PF in Nov.? I am. U should join us!!!! 💓💓💓😱😱

Aug 21Reply

dikacie Hi Linda, I just got back from vacation. I took my little sister who is 20 and mentally challenged and has atusim and many illnesses. I had a flare up of my Lupus aboubt 5 days into it. Im thinking on No..... we both had our BAD days not much out to the beach. The furst day I got a Big Cabana bed thingy dsmn they sint cheap.and should have came with my own cabana boy for the day lol. I was sleeping most of the day. My sister kept ckecking on me. What happened in I took a 600 pill and 2of my 300 I was 600 over what I should had been.. whoo hoo. But not much sun... cone on SunTan City... but still in this horrible flare up.. God knows that ww can only take so much... I'm about to that limit.. many hugs your way. I love your profile and all the Beautiful Women who are leaving testimonials of their lives Thank God for all of you.. one by one...

Aug 21Reply

abstractdreams @twggy : I'm sorry to hear that these illnesses seem to run in your family. You're right about the doc having a hard time agreeing about auto-immune illness/treatments! And diagnosis can take forever!👎Stop by anytime!💋

Aug 24Reply

abstractdreams @cindystuff : 👆👍

Aug 24Reply

abstractdreams @minablack : 💕

Aug 25Reply

minablack @linmp1031 My prayers & Hugs go your way. I completely understand how you feel day to day. As you already know I was Diag. In Jan.2012 with Lupus, Fibro. & two forms of Arthritis. Be strong & brave :-)

Aug 25Reply

tarac71 💜💜💜Thankyou for bringing awareness to this awful Disease!!!! I also suffer from Peripheral & Diabetic Neuropathy!!!! The meds I take make me just gain more,& more weight!

Aug 30Reply

tarac71 WoW you women are an amazing group!!! Most chronic pain sites that I've been on on FB--- are a Huge group of women trying to "out-do" each other's pain‼️. What a relief to hear SO many beautiful women sharing their testimonies,& the testimonies of their family members,friends,co-workers,etc!!!! And what I am NOT hearing is:"poor pitiful ME,why does this effect ME, I am throwing MYself a Pitty Party.....gonna call the Dr,get rfl's on ALL my good stuff & PARTY!!!" INSTEAD, I am finally hearing women(of all ages),daughter,sisters,best friends,girlfriends,wives,mothers,grandmothers.......all of you are lifting each other UP! That's exactly what I needed-----Thank you precious souls for your unselfishness!!!!! I was only able to get a couple of hours of sleep,due to some of my own issues-so I picked-up my phone & finished reading this forum. & instead of telling you MY story, I just what to tell each of you that I pray for each of you to have the best physically,mentally,emotionally fulfilled day that you have had in a long time! Try to get out of that bed,off that couch,out of that recliner. Walk outside & let the Warm sunshine shine on your face(****You Better Take Advantage of it While you can!!! In 2-3 months(or sooner for some of you) There Won't be that nice warm Sun to provide that wonderful Vit. D. I know it's difficult to get up & out, but those Fibro Fighters like me know that the A/C & Ceiling fans contracts our muscles= making them contract & ache. So let's have a beautiful day! I am thankful I found this page/site/group!!! I will tell you more about my life journey later💜😎

Aug 30Reply

deenanelson @dikacie hi, I feel the same. I have Fibro and multiple back injuries and I thought it was caused my my spine injuries??

Sep 09Reply

dikacie UPDATE LADIES: Sincc May I have had two separste injections directly into my IMPINGED SHOULDERS / TORN ROTATR CUFFS. These shots go directly into the the area snd can only be administered every 90 days but they are a God Send because without them I can barely move during the day at nightvi have to sleep with pillows under me and only only my back. Now I feel like Wonder.. Woman...

Sep 09Reply

joopiecharmz Wow didn't know there was a day! I hope some day they find a cure!

Sep 13Reply

beautyblack I live with this everyday, ughhhh

Sep 14Reply

abstractdreams @beautyblack : I'm sorry to hear that Jazmin!👎 I've really been feeling crappy the last few days. It turned cold overnight & Fall is always a difficult time for me. Wishing I still had a hot-tub!😖

Sep 14Reply

beautyblack Yeah, I understand, I've had it for about 5 years now😪😪

Sep 14Reply

kissame2u I to have fibro, my prayers go out to all my other posher sisters too! Keep up the fight till the cure is found!

Sep 20Reply

kissame2u May 12th is also my anniversary. I have been dx with this for 6 years now, but have back issues and migraines. I am glad there is fellow poshers who understand the pain, my hubby tries but there are days he thinks I am just lazy. One day in our shoes he would get it. Thank you again for all this support, I am glad to have found all of you. In my heart and prayers to all😇

Sep 20Reply

wenrella I Know you! U must have changed ur pix? Wait, do I know u? The fibromyalgia has caused memory loss. So I guess we meet again? LOL.

Sep 22Reply

wenrella @sassysuzzy I knew u were praying for me GF. But now I really know cuz I see u everywhere on PM saying so. I love u SS.

Sep 22Reply

shoplovelea Love this! ☺️

Oct 01Reply

cataldic Thanks for sharing this with us! I am no stranger to invisible illness. I have Narcolepsy and Cataplexy. And I know many people with Narcolepsy that also have Fibro (the unfortunate nature of autoimmune diseases leading to other autoimmune diseases. My aunt has hashimotos and Fibro. And my grandfather had Systemic Lupus. It's so helpful when we band together and support each other - because people fortunate enough to escape chronic illness can't understand (even those that try). And depression and anxiety are such a common secondary issue to chronic illness that can cripple us from living the best life "possible" for our particular illnesses. I'm 37, and had an acute onset of severe narcolepsy at the age of 33, which was triggered by an adverse reaction to a vaccination. freaky how quickly things can change and how little we realize how much of ourself we identify with being healthy, working, out hobbies, etc. That's not the nature of our deeper self, but I don't think you really discover that until those things are irrevocably ripped from you life. I guess that's one redeeming thing about being sick - I've learned more about myself and learned to love myself regardless. :)

Oct 07Reply

hollygkim @dikacie I have the exact same arm/shoulder problems! I was diagnosed with fibromyalgia in 2006 and just diagnosed with guillain barre last month. I'm on several muscle relaxers and 1 pain med. I go to pain mgmt. It's the best option for treatment I have found but also hard to "get in". We're military so we move about a lot and it's been hard to get and keep good Drs! Two things I do that relieve pain, muscle cramping. I order real dead sea salt in bulk and soak in the hottest water with 1-2 cups of the salts. I get them from Midwest bath salt company. They sell on eBay pretty cheap! If you get from another source: get certified from "Dead Sea" 100% pure, no additives, no purfumes or colors! The 2nd thing I have a membership for massages I go once at least once a month!

Oct 19Reply

abstractdreams @jujumama5 : While I'm happy to meet you Julie, I'm always sorry to hear from another person fighting the mean lil' Fibro-minion! Spring & Fall are especially difficult for me...

Nov 16Reply

sammy @linmp1031 join the club! There are a lot of on here with Fybro. Beside the pain, it drives me crazy all the things I used to do!!!! Hope u feel better💓💓💓😁

Nov 17Reply

abstractdreams @sammy : It's a club I'd rather not be in...but I gave up thinking about that 30+ years ago. I try to stay focused on the things that I'm still able to do!👍Thx for the good wishes...I hope the same for you!💋

Nov 17Reply

sammy @linmp1031 Linda, I don't want to be in the club either sweetie . I was invited to a book club but it's too far to drive and I don't like to drive at night either. How are u feeling today? My sleep is all off, so embarrassing to me! What a life but I try. My dog and my med MJ really help. Gabapentin sometimes I think I mentioned. Hope ur having a better day! ❤

Nov 17Reply

lynnk4 @linmp1031 Hi Linda, looks like we have more in common than our screen names. :-( Hope you are having a pain free day! XO

Nov 26Reply

abstractdreams @lynnk4 : I'm sorry to hear that Lynn, but happy to meet you!👍Fibro's not for sissy's...right?

Nov 26Reply

lynnk4 @linmp1031 too true! Not for strong women like us either! So happy to meet you love! XO

Nov 26Reply

gailsjewels @linmp1031 I also suffer with this and was diagnosed many years ago, now I have cancer on top of that too.I'm on chemo right now for that and it makes me so tired. So that combined with the fibromyalgia and wow....but I'm alive praise God. I'll keep you in my prayers. Blessings to you. xoxo

Dec 17Reply

abstractdreams @gailsjewels : I'm really sorry to hear this Gail! From my end, I am still following you, so it's a glitch on Posh's end for sure. Sadly, they've been "working on it" for months & months! I regularly see people following me again that I know already were! Hopefully they get it straightened out soon!! I'll include you in my prayers as well.🙏

Dec 17Reply

gailsjewels @linmp1031 thank you so much. I appreciate you very much. I will keep you in my prayers too. Sometimes you just have to unfollow then follow again for it to show up. I hope they fix it soon . Xo

Dec 17Reply

blondielux Hi there fellow Posher. I ran into your closet and saw this post. I have been dealing with Fibro for many years. It is comforting in a way to hear that there are so many women here that know how hard, debilitating and life- altering this condition can be. The weather always affects me and stess is a definite flare for sure. Unfortunately my stress level is about to go through the roof as I have no choice but to start the new year having to file for a divorce. I suffer everyday with this condition that not that many people really understand so thank you for this post!

Jan 09Reply

eliteapplause @abstractdreams Wow! I have had fibro since 1985 following a car accident! 💕💕💕💕

Jan 09Reply

hopesparkles 💜 I just 💖 this post! It's made my day and the minion joke is hilarious! I've had FM since I was 25 and I'll be 42 on St. Patrick's Day. I had FM controlled to some degree that I could work until I fell in a pothole and herniated 11 discs, tore one, impinged multiple nerves including bilateral sciatic with radiculopathy and tore my rotator cuff in 2007. I didn't know I had injured so much because the X-rays didn't show anything. It wasn't until I could barely use my right arm, sit, drive home, etc. that I finally got MRIs & started having surgeries. But since the first one on 5/23/08 I haven't been able to work. In addition to these ailments I now how Hemiplegic Migraine that can paralyze me and mimic stroke, Reactive Airway Disease, a Cortisol Deficiency and if all this wasn't hard enough I'm getting over Shingles, lol! Thankfully the Gabapentin I'm on for FM, HM and the spine pain helped with the Shingles and Herpetic Neuropathy. And to think I thought Surviving cancer was bad when I was 18 going on 19!!! I'll be a 23 year survivor on 1/13 and my mom will be a 2 year survivor on 1/14! Thanks again for this great post! 💜

Jan 10Reply

abstractdreams @hopesparkles : I always have mixed feelings when someone stops to tell their Fibro (or other chronic illness) story. While I'm happy that they found and can relate to Fibro-Girl/Fibro Minion, I'm also so sad that so many suffer daily. I take Gabapentin as well & it's been a Godsend! Here's to a happy, healthy 2015 for us ALL!👍💋

Jan 10Reply

sammy @sammy I. Suffered for so many years with weeks all I did was cry. I still have pain and sometimes bad but some friends recommended legalized MJ. I was scared and put off getting a license but finally did. The sucking candies and the cookies help so much with the pain. I can't believe it. I carry the candies around if I get stuck somewhere. I don't get high on it. It's worth it anyway. If u live in a legalized medical MJ, I highly recommend it even if you've never tried it. They deliver so u don't have to go anywhere. Best to all!!!

Jan 10Reply

abstractdreams @sammy : I hope you find relief!👍It's medically legal here in MI but I haven't found the need to get my card.

Jan 12Reply

lmpasternack @abstractdreams awesome!!!! I love the little minion. He is the little jerk that runs around inside pounding from the inside out isn't he? Sometimes he runs around and other times he stays in one spot until you want to punch him in the face. I know him well. Ha! My version of him in my mind anyway. You should have him made and sell him for fibro research! 💜😘💜 I LOVE FIBRO GIRL TOO!!!

Jan 12Reply

sammy @abstractdreams Linda, glad u don't need a card. Do u take anything?

Jan 14Reply

abstractdreams @sammy : i've been ill and seriously medicated for most of my life, and I was still in pain. I'm way better since divorcing the Lord of Darkness in 2005 & am willing to trade some pain for not feeling overmedicated. I take Mobic & Gabapentin & do usually take a low dose Tramadol in the morning & at bedtime. That's it. It's a HUGE improvement for me!👍

Jan 14Reply

sammy @abstractdreams a stinking man did this to u basically. No wonder u were so medicated. I take Gabapentin but it only works the first few days. A little bit of Soma and the edibles. I'm so glad you are less medicated and on here. Feel better whatever that means. Have a good day then.

Jan 14Reply

abstractdreams @sammy : Thx. You too hon. Give Gabapentin a chance, it can take awhile for it to do you real good. I may've said this, but I happen to know the scientist who made it & then tweaked it into Lyrica (he called it "son of Neurontin"). I may be the first person ever to use it for these issues. It was an epilepsy drug. He went to Neurology conferences all over the world & learned that it sucked as a seizure med but may be better for inflammatory pain. My Rheumatologist was right across the street from Phizer at the time & she spent about an hour figuring out the protocol for Lupus/Fibro & I've been on it since! 20+ years!👍

Jan 14Reply

sammy @abstractdreams wow Linda. Quite a story. Fascinating. I've been on it a year plus and at first it worked great and then I'd take it for a few days and it wouldnt work after that. Lyrica didn't do a thing. I'm still taking the GABA anyway. Can u work out or play any sports or is it too painful? I'm afraid to even try. My past sports involve the upper back and shoulders and arms which is where all my pain is. It's a real bummer. I used to play and then be in pain after and load up on Soma but I rarely take them anymore. Not worth it ! Thxs for the info. ❤❤❤

Jan 14Reply

abstractdreams @sammy : Since my fall at work last Feb., I don't do anything but PT. I loved playing sports, but am more limited now due to many surgeries over the last 35+ years. Gabapentin is not a pain pill in the traditional sense. It effects how your brain perceives pain. When you say GABA do you mean Gabapentin or the sleep hormone GABA?

Jan 14Reply

vrpena @rainbow_ashes

Jan 20Reply

acephalous Same here, plus lupus and lots of "friend"

Jan 22Reply

abstractdreams @acephalous : I have SLE also Natasha. There's a small group of us that have both (along with the extra "friends").😳

Jan 22Reply

teresaposhlove @abstractdreams had it for years. If you don't have it NO ONE CAN UNDERSTAND IT.💔

Jan 24Reply

abstractdreams @teresakimbro : You said it Teresa! Do you share some coping strategies that work for you?

Jan 25Reply

abstractdreams @teresakimbro : Could you share coping strategies? PM shared my comment in the middle of editing! Grrr!😖

Jan 25Reply

teresaposhlove @abstractdreams ANYTHING FOR YOU!!!!!😘🎉💄

Jan 25Reply

singaporejones 😂 Yeah, why don't those of us with chronic thingies get a superhero costume? I don't have fibro, but I've had friends who have. Me, I'm Bipolar Girl! I don't think we get an official color, dammit. I choose green. No, red! No... Hey, both! Oh, wait, no, total Christmas elf.... And sorry to hear about the Lord of Darkness. Mine was more the Prince of Insufficient Light. Glad you're detoxed now.

Jan 26Reply

abstractdreams @singaporejones : HA! You're hilarious! The stress of living with my ex was just too much for me! Life can still be stressful, but I can cope just fine now!👍

Jan 26Reply

singaporejones Glad to hear it! 😁 I shouldn't have gotten hitched to him in the first place, but such is life. I suppose the ironic thing is I have the partial reassurance that I really WASN'T in my right mind at the time... 😜 I wish I had some decent advice for folks with fibro. I met a lovely lady a few years ago who did backstage work at a local community theatre when she felt up to it; her husband, also her doctor, acted sometimes. She and I handled costume changes for one production. Like strong people everywhere, you wouldn't know she had anything like that. I suspect she isn't quite aware of the quiet strength she has. She's a little shy and a bit self-conscious, and too many people overlook her simply because she's nice... But I know I'd want her at my back in a bar fight. 😉 So maybe saying that much will help. I'm almost grateful to have my particular b.s., you know? Without it, I don't know if I'd ever have met so many people who demonstrate just how strong we can be, even when all we really want to do is pull the covers back over our heads. I wouldn't wish anything chronic on anyone for even a minute. Having had to join such a club without even the option to say, "Uh, wait, what..?" sucketh. But if this is the club I belong to, it's a damn good club, because we would all kick ass in a bar fight. I mean, come on, mowing down hoodlums and vampires and zombies? Pffft. That's daisy picking. Amiright? 😆

Jan 27Reply

singaporejones And no, I'm not in the middle of a hypomanic episode when I say that! 😜 😊

Jan 27Reply

abstractdreams @singaporejones : You just said a mouthful sista!! I for one, appreciate it when someone notices, I'm sure the other ladies here do too. "You never know how strong you are until strong is your only choice" is very true. Consider yourself an honorary member of this club! 👍💋

Jan 27Reply

singaporejones 😃 Thank you! 😄

Jan 30Reply

baybeautiful I know the pain..I have a condition called pcos... love this post

Feb 02Reply

heatherschoice I know this isn't a cure all and I hate to sound like a band wagon jumper so I'm just putting this out there for all you ladies who suffer with the daily aches and bad bad pain. Seriously try taking a spoon of coconut oil and swallowing. One in morning and one in evening to start. I swallow 3 in morning and 3 at night. It doesn't cure all, but it does help balance swelling and inflammation that adds pressure to all those painful spots(which for me is my entire body). It has many healing effects. It doesn't work on everyone simply due to how toxic our bodies are. I detoxes all natural then started doing this in a cleaned out system. I went 120 days of only fresh fruits, nuts and veggies. If I ate meat(rarely they this detox) it was chicken all organic fed. No other foods oils or anything. So it worked fast on me. If you want info look up Virgin coconut oil. I order mine online- Tropical Traditions Gold Label. It helps Alzheimer's disease, helps ppl with ADD & ADHD(helps them slow down n focus). It helps acne. I use it on my entire body. I put it on my face and go to bed every night. I don't ever wear make up(I don't own 1 bit of any) & my skin is awesome. Ask if have any questions.

Feb 12Reply

heatherschoice Oh I'm sorry sis, maybe I shouldn't have promoted that in your closet.😁😳 I wasn't thinking, I was just thinking of helping give a ltl relief. Plz forgive my rude imposition in your closet.

Feb 12Reply

abstractdreams @heatherschoice : Np. Sharing things we've tried for possible relief is A-ok with me!👍💋

Feb 12Reply

heatherschoice Ok good.

Feb 12Reply

abstractdreams @ridinghood13 : Same to you hon. Sending gentle ((hugs)).💋

Feb 21Reply

abstractdreams We do...for sure!😣 @ridinghood13

Feb 21Reply

cutiepatootie2u Hi all....what a blessing this is! I was diagnosed with psoriactic arthritis at the age of 30yrs old which is apparently more common than I ever thought. First started with severe knee pain but as an avid vball player....i never thought anything about it besides maybe i fell on the sand wrong during practice. It wasn't until it completely debilitated me to the point of total surrender that i knew something was wrong. Thank God for my supportive husband, carrying me to the bathroom and overnight hospital stays.....we were even financially overwhelmed bc of all the medical bills. But God......today several years later i am walking, laughing and doing things i took for granted. Just wanted to encourage everyone bc psoriactic arthritis is so close to fibromyalgia that is what my doctor initially thought i had...things will get better. Praying that your deepest desires of being healthy will be heard and healed. Love you ladies. I pray u all find a loving church home to keep your hearts inspired and encouraged. Please know that I truly know the depths of all your pain in every literal sense. Blessings to all!

Feb 27Reply

abstractdreams @cutiepatootie2u : Thx! Many of the Rheumatological Disorders have similar symptoms.👎Drop in anytime for support or to encourage others, like you did today. Be well.👍💋

Feb 27Reply

cutiepatootie2u I sure will. Thanks for this awesome idea!! @abstractdreams sometimes its hard to hear "i understand " when ya don't really but you troopers do!!!

Feb 27Reply

mlevene I hear you and have been on that pain train since 2000. Hang in in there!

Feb 27Reply

abstractdreams @mlevene : What other choice do we have...right?👍💋

Feb 27Reply

shawnanagans Wow I am so sorry to hear that all of you share my pain I was recently diagnosed with fybro, migraines and arthritis. I have pain and fatigue all the time. The dr.s tell me that you cant just all of a sudden develop asthma at 49, but I wheeze so they put me on an asthma inhaler. They've checked my heart and lungs, both ok. I've had anxiety and IBS all my life and sorry to say have passed it on to my two girls. I took care of my mom for almost 15 years and my dad for the first three of those. All through this time my sister harassed me, called APS on me, made my mom cry and wish she was dead. She said there was nothing wrong with me, and never lifted a finger to help. She said it was my job. She turned family members against me with her lies. Because of this stress I now have depression. I hear you all talking about cold days being the worst. I live in California but because of all of this we are planning to move to North Carolina. I figure a whole country should be enough space to put between me and my sister. I need to start a new life while I have life left. Are the winters going to kill me, pain wise?

Mar 01Reply

abstractdreams @shaboo365 : If you have inflammation of the chest wall or any part of the respiratory system, that can cause problems breathing. Your kids have a greater chance than the gen pop to have autoimmune issues, but that's not written in stone just because you're sick. Neither of my girls have health probs (thank God!).👍💋

Mar 01Reply

hwiginton @abstractdreams I can relate Linda! I have MS!! Prayers for you!! 💞💞💞

Mar 11Reply

divaheaven I love this. I also have Lupus and Fibromyalgia. I am a new Posher. I am still learning. I will definitely keep you in my prayers. It is a struggle to get up and go to work, but I am a trooper. 😃😃😃😃

Mar 12Reply

abstractdreams @hwiginton : Prayers for you as well Heather.🙏My second diagnosis was actually MS. The Rheumatologic disorders have similar symptoms & labs. Take good care of you.👍💋

Mar 12Reply

hwiginton @abstractdreams Thanks so much Linda!! You too honey!! 💞💞💞

Mar 12Reply

bittersweetswap 😈 to say the least this Fibro and Lupus are definitely little suckers but I have to say staying strong and having a support system just like having others who have the same thing even something like this is the perfect answer sometimes just talking about it makes it just a tad better stay strong girls we got this💜💜💜💜😘. Give it all your butterflies

Mar 22Reply

abstractdreams @bittersweetswap : You said it Lola!👍I hope today's a good day.💋

Mar 22Reply

bittersweetswap @abstractdreams back at cha girlie 👍sending you hope for strength to be stronger then any pain you get today 😘😘😘

Mar 22Reply

abstractdreams @bittersweetswap : I'm having a pretty good day!👍Getting some things done. I may pay for it later, but today I'm good! Poshing in between! Hope you're well.💋

Mar 22Reply

pearlyshells2 Hi~Om Gosh..ladies, Thank you for sharing about this terrible thing called Fibromyalgia. Praying for a cure to end your suffering. Hugs!! 🙏🌴☀️🌞👍🌺

Mar 25Reply

abstractdreams @pearlyshells2 : Thx so much for your interest & prayers.😘

Mar 25Reply

whatsleft @abstractdreams I am right there with you! Fibro, Lupus among a few! I am Sharon, it is so nice to meet you! 💖💖💖💖💐

Mar 28Reply

abstractdreams @whatsleft : Hi Sharon! I believe we've met, I was @linmp1031, but I don't think I made the illness connection before. Praying that today's a good day for you.👍💋

Mar 28Reply

whatsleft @abstractdreams Oh gotcha! Brain fog! Sorry! Have a happy day 💜

Mar 28Reply

divaheaven How are you doing today? I'm in the hospital now with my asthma but one thing triggers another.

Mar 31Reply

curlysshop ❤ thats my bday too !

Apr 12Reply

beckey68 I feel for everyone with this disease. I also suffer from fibro along with RA, and an Interstitial lung disease, so when I have a bad day...it's a bad day! 😡😭

Apr 14Reply

vivaware @abstractdreams thank you for this. I have been through incredible pain for the last 2 years and last week the Dr diagnosed Fibro. I still think there is something else going on on top of that because I wake up every day with a large intense localized area of pain on top of the all over pains, but hopefully he will keep digging until he figures that one out. Hopefully it won't take another two years. It was so good to see so many other people are going through similar things. I appreciate you!

Apr 18Reply

abstractdreams @vivaware : I'm sorry to hear this. Do some online research on your own, there's a lot of info out there that may help you assist your doc, manage pain, learn coping mechanisms... and more! Your doc has a medical degree, but you have a degree in YOU.👍🏼💋

Apr 18Reply

peridotglow I didn't know there was a day for us! Thanks for the posts!

Apr 23Reply

cdelp116 Hello Dear😊. I'm so sorry to hear you and the others that have commented here suffer from this PAINFUL disease!!😢. I myself was diagnosed over 30 years ago, I pray🙏🏻 the good Lord lets our scientist find a cure! And for now to step up w/the choices of medication to relieve the pain. When I have a fare up, it's on narcotics and I take to my bed😕. God Bless!

Apr 27Reply

tub @sinnybun Thought you might want to read this! Especially since you have it!

May 02Reply

chupita69 @abstractdreams I also have Lupus and Fibromylgia and among 19 other pills, I take Lyrica. I've had several surgeries and it has affected my Liver, Kidneys and blood but am doing better. I have my flares often but try to be positive most of the time😉. I will pray for you all🙏. Stay safe!

May 08Reply

abstractdreams @chupita69 : There's hope...I'm only on 3 meds & qualified for life ins., because none of them are Lupus drugs! I know the scientist who made Neurontin (Gabapentin) and Lyrica. You can take Gabapentin, it's what Lyrica came from & is generic! Sending gentle ((hugs)) & prayers.💋

May 08Reply

jeweledonyx OMG!! Same problems over here! I don't think it's in my closet but I TRULY understand!! Diagnosed in 1998, health care recognition is EVERYTHING! Also have migraines and heart damage from a saddle PE. Sending up prayers and good wishes, hoping they help sustain you. God Bless😇😘😇

May 09Reply

chupita69 @abstractdreams I'll look into that med when I see my doctor next week. Thanks and another one right back at you😉

May 09Reply

loriepierce @abstractdreams , I was diagnosed with this 6 months ago.

May 15Reply

abstractdreams @loriepierce : I'm sorry.💕A definite diagnosis can help tho. Are you getting any relief from treatment?

May 15Reply

loriepierce @abstractdreams, believe it or not Vitamin D prescribed level and B12 has helped alot. I do not deal well with pain meds and quite honestly scared of them, however, I do have a prescribed anti inflammatory. Most days I just suffer through. Heat is a life saver for me.

May 15Reply

abstractdreams @loriepierce : I've been ill for a LONG time & after a recent surgery, the doc advised high vitamin D (which I was already doing due to Osteoporosis). I asked him why & he told me about the chronic pain studies!👍🏽After being medicated for too many years, I'm a less is more person, even if it means some pain. It's good to have a script (low level) for when it gets unbearable tho.

May 15Reply

loriepierce @abstractdreams, been going through testing for Lupus, etc. They cannot figure out why my Rheumatoid Factors are so high. Regardless, nice to know I am not crazy now when I have random pain flare ups and joint swelling and foggy thoughts. Ha.

May 15Reply

abstractdreams @loriepierce : I don't want to jinx things, because I surely hope it's not, but that sounds like Lupus! Though there are about 88+ Rheumatologic disorders & most have similar symptoms & lab values. Do you have a good Rheumatologist? That's critical. That and getting good sleep.

May 15Reply

loriepierce @abstractdreams, thankfully I was referred to an great Rheumatologist.

May 15Reply

abstractdreams @loriepierce : Excellent! They make a career of the head scratching cases!👍🏽Now for the sleep part. That's huge because it breaks the pain cycle. If you read the comments here, there's some info & suggestions. My treatments of choice are massage & acupuncture. I know the drug doc who made gabapentin, the drug that Lyrica is made from. It's not a "pain drug" but works on pain & is pretty benign. Your doc will discuss all the pros & cons.👍🏽

May 15Reply

loriepierce @abstractdreams, thanks so much for the info. I am going to go on here and read all of the comments. So helpful. I am Lorie. Such a pleasure to meet you.

May 15Reply

gulfportgyrl Thank you for sharing this very important information!

May 16Reply

travelbugginger @kcford24 I thought if you hadn't crossed paths yet, you might enjoy checking out this closet because of this encouraging post, but also her warm welcome to us new Poshers! Looking forward to browsing the rest of the closet now! 😊

May 17Reply

chrisanny This is the first listing on posh I've seen regarding fibromyalgia. So many people don't understand it. I was diagnosed a couple years ago but I've been battling it for much longer than that. Having this disease sucks. I get accused of being lazy or that I'm faking. I quite trying to get others to understand the pain and suffering I go through 24/7. I see no use already. I'm 39 years old but I feel like I'm 60 most days. I force myself to get out of bed everyday to make myself seem Ok.

Jun 15Reply

jeweledonyx I knew I'd met you somewhere and I have this bookmarked in my closet to check out...eventually. Never enough time in a day. My journey with CFS, Fibromyalgia and Lupus has taken me to some strange places. Autoimmune diseases are so insidious and can be far reaching. Managing my own stress is probably the most difficult for me.

Jun 23Reply

jeweledonyx I'm Type A personality and I can't tell you how frustrated I get at times. That alone will set off a flare of fibro, migraines, lichen planus, weight loss (I have Graves' Disease) I have more allergies than I can count and the gabapentin derived drugs don't work, GABA didn't help and long lasting narcotics gave me...

Jun 23Reply

jeweledonyx back my life when I needed it most. They also took a lot from me but now I take nothing daily other than Warfarin and Synthroid/Cytomel and Wellbutrin. That combo and a Tylenol #4 when the pain gets out of hand has allowed me more freedom for the last 10 years than anything else I've tried and I think I tried the all, LOL

Jun 23Reply

jeweledonyx Here's hoping someday there's a cure, that if you're young and effected you will not give up hope but continue to seek good healthcare and stay proactive with research, changing doctors and methods if YOU think it will help. I may be chronically ill, but I won't let it take me out. Stay hopeful and be your own best advocate--Kaye :)

Jun 23Reply

abstractdreams @jeweledonyx : I've been ill for 35+ years, I had to be my own "advocate." There was no such thing. It gets me down for brief periods now & then when I'm just worn out. It doesn't last long...I'm a fighter! Prayers, ((gentle hugs)), and all the super-hero vibes I can muster go out to you. I hope today's a good day.👍🏽💋

Jun 23Reply

abstractdreams You tried the hormone GABA?

Jun 23Reply

abstractdreams @jeweledonyx :👆🏽

Jun 23Reply

jeweledonyx I have, but after having a complete thyroidectomy w/removal of two parathyroids I can barely synthesize Synthroid w/Cytomel...I'm also balancing that w/ Warfarin after a saddle clot tried to kill me, Gaba & a lot of sleep? I wish but hormones, that don't work for me, actually work against me.

Jun 23Reply

abstractdreams @jeweledonyx : Not hormones...hormones, brain hormones for sleep. That's what GABA is...the stay asleep hormone. Melatonin's the fall asleep hormone. They're more effective long term than sleep drugs. I'm a Sleep Tech, I evangelize constantly about sleep. Lol! It makes everything better!👍🏽

Jun 23Reply

jeweledonyx I understand what you 're saying. I'm an RRT and hormones, all hormones effect the brain otherwise nothing would work, we'd just shut down like the Rusty Tinman. OTOH, I agree, sleep makes everything better, however, for some it seems nothing works either to get there and/or to stay there. I'm one💤 💤 😆

Jun 23Reply

gimmecoffee @abstractdreams I suffer everyday too. Especially when the weather changes. 😒😕😭

Jun 24Reply

abstractdreams @gimmecoffee : I'm very effected by weather also Leanne. Barometric changes make my bones scream!!👎🏽😖

Jun 24Reply

habanera87 @abstractdreams linda boo. I didn't want to say it to anyone but I have to talk to somebody, and whom better than you amiga. I divorcing my husband. Have to raise enough money to get my own place. It's so scary OMG IM BROKEN. But I know I can make it! We are ok, no arguments or fuss, it's just didn't work. Pray for me amigas please: @reneedavis @jesstb @tazze.... You all are like the family I don't have close to me. Thanks for your support!

Jul 06Reply

jesstb @habanera87 omg im so sorry to hear that love. Your in my prayers and im wishing you the best. Ill be back on tonight and ill message you then. Hold your head up.

Jul 06Reply

habanera87 @abstractdreams Linda read above

Jul 07Reply

janimack7 Hi Linda! So many of us...too many! I had been treated for years for Addison's disease. I kept getting worse & worse, despite increasing meds. My endocrinologist finally sent me to the Oregon Health Sciences University for evaluation. After many tests, exams, etc...I was diagnosed with fibromyalgia and a daytime sleep disorder. I went through their fibromyalgia clinic and learned a lot! They had just finished clinical trials on Xyrem. Theory being that we don't go

Aug 18Reply

janimack7 into stage 4 sleep, thus the everyday wear and tear on our bodies never heal like most people. (Stage 4 is when our bodies heal each night,). Since starting this many years ago, my pain has been much improved. Something to look into if interested.💗 This may have been doubly important because of my daytime sleep disorder as well...it is used for people with narcolepsy.

Aug 18Reply

abstractdreams @janimack7 : I'm not familiar with Addison's (except President Kennedy had it?). I'm a Sleep Tech tho, and actually stage 3 & 4 (slow wave sleep) have been merged medically a number of years ago. And when we score a sleep study, we only score to stage 3. I'm not aware of a direct connection, sleep deprivation (which ppl in chronic pain suffer, regardless of the number of hours they sleep) makes everything worse!

Aug 18Reply

abstractdreams @janimack7 : So...do they think you actually have Narcolepsy?

Aug 18Reply

janimack7 @abstractdreams My sleep disorder is on the narcolepsy --- awake spectrum. I don't fall asleep spontaneously, like narcoleptics, but during a 24 hour sleep study I slept all night, then was awakened at 6am...then put down to nap every 2hours for the next 10 hours. The average time it took me to go to sleep was 4.3 minutes. I was walking around exhausted all the time. The OHSU doctor explained the theory they were working on was not that people with

Aug 18Reply

janimack7 @abstractdreams continued: fibromyalgia needed MORE sleep...but more sleep in the stage where your body and mind are most quiet. It is the stage (I knew they renamed the stages, but I'm old school & can't remember the new name) when babies sleep their bodies are totally limp, they can be moved, have loud noises sound, and their bodies remain sound asleep. The Xyrem puts people directly into that deep sleep. It has a very short half-life, so it is taken twice

Aug 18Reply

janimack7 @abstractdreams cont.. during the night. It has made a definite positive impact in not only my ability to stay awake during the day, but also in my pain levels. I still hurt, but the most intense pains have been eased considerably. Then during the day I am more active, because I'm actually awake most of the day, and because my pain is much less limiting. It has literally been a life-giving therapy for me. ✨💟✨

Aug 18Reply

abstractdreams @janimack7 : Interestingly, 5 or 6 years ago, the manufacturer tried to get it approved for Fibro. Obviously, it was a no go.👎🏽

Aug 18Reply

janimack7 @abstractdreams Then I am very lucky! My insurance pays for it...because of my sleep disorder. The doctor that prescribed it told me they were having difficulty getting it approved....which was probably 7 or 8 years ago. It definitely has helped with my fibromyalgia...I was able to get off Lyrica. It took awhile, but was well worth it. My head isn't quite so foggy now.

Aug 18Reply

abstractdreams @janimack7 : Well that's great! Feeling better, sleeping at appropriate times & covered by ins! 👍🏽I was one of the first patients to use Gabapentin (Lyrica's base compound) for Lupus, just because I happen to know the drug scientist! I've been on it for years, and don't suffer a single side effect!😉

Aug 18Reply

janimack7 That is wonderful, Linda! I wonder if the root drug is more pure and therefore less side effects. My mom suffers ( MUCH worse than me) with fibromyalgia and had the same foggy mind on Lyrica...maybe our genetic makeup doesn't do as well as most. Glad you are doing well. Adding lupus to the fibro must be difficult. I admire your openness and strength! @abstractdreams

Aug 19Reply

flutter_buys Hi Ladies @janimack7 I was just reading the above posts. Very interesting about the sleep! I do take a sleeping pill as well. I have also been on both the gabapentin and the lyrica. The lyrica was horrible!! After about a year to 6 months I got off of it! The Gabapentin did work much better for me.But I no longer take that as well.So sick of the trail and error method!! I had really bad depresion last winter. Really bad!! (cont)

Aug 21Reply

flutter_buys @janimack7 So they changed those meds around, now I seem to be doing better! Then , plus, I found Posh!! And you lovely ladies for some support! :) Also I have been having injections and procedures on my neck and back. That has been helping too! Thank God! I don't know what I would have done after the last winter I had! It was one of the worst spells I have ever had! It gets very overwhelming! (cont)

Aug 21Reply

flutter_buys But I have been having good days lately! I have another procedure coming up this week as a matter of fact! Can't wait! lol! Funny, I'm looking forward to going to the freakin surgical center! lol! Hope you ladies are having a good day too! :) Thanks for listening to my crap!lol! ;)

Aug 21Reply

abstractdreams @kcford24 : I think it's so interesting the effect that the meds have on different ppl. I'm friends with the drug scientist, He called "Lyrica" (which was just Pregabin at the time) son of Neurontin. Lol! They're basically the same drug. I feel so fortunate maybe being the first person to get it for these issues 20+ years ago! And no side effects for me!👍🏽💕Do you mind telling me what sleep med you on & does it work?

Aug 21Reply

flutter_buys I was on that too! (neurontin) My Dr. stop his practice a after my diagnosis!! So I kinda had to start over! Ah! You know how that can be! Crazy! But, yeah I take xanax for my anxiety. Which I've had for a very long time! longer then the Fibro, that I knew of anyway! That helps me sleep too! :)

Aug 21Reply

janimack7 @kcford24 So glad you found therapies that work for you! I had injections in my neck and back...and I looked forward to those! I sure hope your depression doesn't come back... That in itself can be terribly debilitating. Wish I could help...💟💞💟

Aug 22Reply

flutter_buys Hi Linda! How are you feeling today?! I just had a back procedure yesterday. So I'm sore as all get out !! Just waiting for the party, laid up in bed! Hope you have a good night! 😊💞

Aug 29Reply

abstractdreams @kcford24 : Oh NO! Injections? I hope the outcome is GOOD!👍🏽💕I'm waiting to hear about a 4th surgery on my shoulder & I'm getting the silent treatment from the workman's comp ins company.👎🏽They stopped my PT a couple weeks ago & now they seem to be hoping I'll just go away.😒

Aug 29Reply

flutter_buys Yeah, they said wait a few days, to see how I feel. I had radio frequency done in my neck, and that didn't help for awhile, but eventually it did help!!:) Thank God!! Hope this works too! That's horrible!! You really need to keep up with your PT!! Hope it all goes well my friend!! 4 surgeries! That's not good!! Hopefully they will get it right!! :)

Aug 29Reply

kimsgurl143 So so many on here have described my life to a T! It is hard to live a life with the conditions we all face daily&then wer treated most times as if there nutin wrong bc we DONT LOOK LIKE WER SICK! Like others, I suffer with fibre,DDD,IBS,bulged disc in cervical&lumbar area, with one disc is rupturing.Iv got sever stenosis in my whole spine, but the pain in my thoracic area is the worst pain ever.

Sep 10Reply

kimsgurl143 I had read ones reply about needle pin sticks, I call it needle pricks, well nine started in a small area of my back about 10 yrs ago. Now it's all the way across my back, my spine bc of the stenosis is in sever pain when I move,then the muscles all the way across my back over each shoulder blade&bone hurt At a 9 factor every day. Iv got 5 different test already set for this month.

Sep 10Reply

kimsgurl143 Iv been on sum kind of chronic pain and breakthrough pain meds for 16 yrs,andvright now I'm on the highest allowed by Fda,but I'm in more pain now then ever. I v had to make sum very regretful decisions bc of the pain&issues from all this tht not only affected me but my granddaughter&husband terribly. Just one for ex. I took in my 2yo gson bk on Feb but bc of my health issues&bc the state didn't keep the word on wht they wer suppose to do to help me,aftr several months of praying for help

Sep 10Reply

kimsgurl143 In making the right decision and thevstrength&courahe to carry thru with it, I had to give him up, Aug 4th I lost him to foster care,alotta things caused so much stress, mainly his mama, if thts wht u wnta call her,shes abused my son, physically, mentally&verbally,all while he wouldn't defend himself bc he knew how to work the system to not get locked up, but he would, although he never laid a hand on her. Now as a mother

Sep 10Reply

kimsgurl143 Watching all this and tryin to keep my eye out on her lil devious scemes,pure exhaustion,she as another stated, is the PRINCESS OF DARKNESS!. so now my son is locked up(which is a blessing in disguise).bc she black mailed him into stupidly stealing a credit card, so all this time I'm telling him, I cnt care for ur children&stil watch what happening&gona happen bc of ur deeds for her, that youl be the one goin dwn &loosing ur freedom bc she knows how To use you.

Sep 10Reply

abstractdreams @kimsgurl143 : I'm sorry to hear that Juanita (my mom's name too💕)! I was exactly wear you are med wise 15 years ago. My Lupus doc knew a pain doc who admitted me & I detoxed as an inpatient. I decided I never want to do that again!! I started out on nothing, literally & then otc pain relievers & now I manage on 2 Tramadol a day. I do acupuncture & as much massage as I can tolerate. I'd rather have pain then be drugged the rest of my life (I was on narcotics for 30 years & they stop working!)!

Sep 10Reply

abstractdreams @kimsgurl143 : That was me. My ex is the Lord of Darkness!! Lol! I truly pray that your son learns the right way to go while he's away & one of you gets the baby back.🙏🏽💕

Sep 10Reply

kimsgurl143 Sorry got off subject. It was just too hard for me to care for a child thts been treated as a 12/13 yo& did just as he pleSed, and with fostering, I couldn't do any kind if disclipine other than time out&puttin him in the corner, well now I have Sheetrock in the corners of my home yet hav been eating thru&thts just a bit of example. Yes this disease/disorder&all tht goes with it WIL take ur life if only you let it&ther was a time I did just that&so now iv been fighting to regain mine.

Sep 10Reply

kimsgurl143 Prayers to all, PS. prayers requested as I have a CT scan to have today, pray all comes out well. I ask thanks&May God Richly Bless&Keep you!

Sep 10Reply

kimsgurl143 Thanks for your kind words. And yea I came off all my meds and was on nothing one week prior to gettin the baby, I tried for another week aftr getting him&just couldn't do it. And at the moment the drs&i are just trying to find out all that's wrong, as I went to one ortho pain specialist for 14 yrs, he did nothing but 2 nris&pushed meds. So in jan I started with a new set a great caring Dr's. So once we find out aftr all the tests done this month

Sep 10Reply

kimsgurl143 All's that's messed up, il go from there on all the alternatives to get relief from the pain. But as far S the shoes,id love to be able to make a offer, as I have a pair that's just now getting broke in aftr lord I guess 15yrs,(which I take gud care of my shoes). But bc theyve been such gym shoes, I wanted to get another pair. But as yours is my funds are very low, bc Iv bought a bundle of clothes twice since school started for my gdaughter.

Sep 10Reply

kimsgurl143 But I thank you for your offer, but at this time Il keep then in NY likes. You take gud care of yourself.

Sep 10Reply

kimsgurl143 Oh&Thank you so much for all the shares. Iv got sum test to go to today, so Il return the favor asap. Thanks again.

Sep 10Reply

abstractdreams @kimsgurl143 : Good! That's a WAY better plan, even if you have to be on something, having docs who understand that you don't want to be a walking zombie is better all the way around. I understand if you want to wait on the shoes, lmk if you're looking for anything else. I'm a big gifter.👍🏽💕

Sep 10Reply

kimsgurl143 @abstractdreams thanks hun! And yes, I sure will. You take care of yourself. Gods Blessings

Sep 10Reply

kimsgurl143 Also, hey if you no of anyone that can help in a trading,i need sum I guess you'd call it lounge clothes, nothing fancy, no lace, just sum Capri's shorts and T-shirts,all cotton if possible. I'm in my 6th yr of meno and between that and the meds I take, I stay soaking wet with hot flashes at all times, no joking. I no women hav hotglashes with meno but mine are as bad as the pain I go thtu& the aggravation is so stressful.,u seem to no alotta pple on here so I hope u Cn help me.

Sep 10Reply

abstractdreams @bellacincy

Jan 20Reply

rubynspice 💜💜💜💜💜

Jan 31Reply

jennijb1 I am a 26 year veteran of Fibromyalgia! Thanks for the awareness!

Feb 03Reply

abstractdreams @jennijb1 : I'm sorry to hear that...I hope today was a good day.💕I've been dealing with it most of my life, but was diagnosed 35+ years ago.👎🏽😖

Feb 03Reply

danielashops I'm still praying for a cure. This is the most exhausting illness.

Feb 15Reply

abstractdreams @danielashops : Agreed! I've been ill most of my life tho, so I look at it as a good day's just not as bad as a bad day.😖

Feb 15Reply

abstractdreams @lisayums : Thank you Lisa, I ran Lupus/Fibro support & education for years & I know how much info, venting & support from other's on the same road helps. I know that many woman improve after menopause, I hope your mom is well.💕

Feb 18Reply

mrpants I also have Fibromyalgia - it is a daily struggle. Stay strong, girl!

Feb 21Reply

lynda721 @abstractdreams Love this, Linda! I'm right there with you, girl! 👍

Feb 22Reply

abstractdreams @lhaag721 : I'm so sorry to hear that Lynda.👎🏽Spring is a difficult time for me (Fall too), and the stress of Miss Ebony's kidney disease doesn't help...I'm not having my best day.😕

Feb 22Reply

lynda721 @abstractdreams I have the same issues with Spring and Fall. It is so unbelievable to see how many people have responded to this post that are also victims of Fibro. I'm glad you posted this. It's a place where we can all support and understand. One day at a time, honey. That's what we have to do. I hope tomorrow will be a good day for you. Keep in touch! Sending love and prayers. 💕🙏

Feb 22Reply

abstractdreams @lhaag721 Agreed! I have Lupus also & ran support & education for years before Fibro support groups were common & learned how much good a little understanding & a sympathetic ear can do! It's huge! So after talking to quite a few others here, I thought I'd pull out Fibro-Girl & see what happened. The Minion, I borrowed from another Posher, but there's so many that I can't remember who! Fibro Fog?! Lol! Yeah...I'll go with that!😆

Feb 23Reply

abstractdreams @lpray2 : Hi Linda, although I put this up for a reminder that we're not alone, I'm always sorry to hear someone say that they suffer from Fibro (and many of us have other autoimmune/inflammatory issues as well).😕I'm 59 & have been ill most of my life, but I'm healthier now that I divorced the source of most of my stress! Life comes with stress, but not as much as living with him did!👺👎🏽I hope today's a good day.

Mar 07Reply

loopholer I love this! Support your cause and show me you on here ladies!!!

Mar 09Reply

diryan0912 Welcome to the club! Seems my fibro is worse n worse es day... Grateful for husband n furry son.. Mom in law worth a million bucks+++. My mentors n motivators. Now if only the pain could ease up!

Mar 10Reply

abstractdreams @diryan0912 : You said it! Spring/Fall are difficult for me, but I just put one foot in front of the other (most days)!👍🏽💕

Mar 10Reply

diryan0912 Wow, that's what my mom in law tells me!! Take first step and Jehovah will handle the rest! Phew! Hard!

Mar 10Reply

abstractdreams @diryan0912 : I've been ill most of my life & I'm 60 in Oct. Nothing else gets you where you wanna go! Lol

Mar 10Reply

diryan0912 I hear ya.. If you ever need someone to talk to, I know I don't sleep at night, u can email me dryan0912@yahoo.com I'm sure there will be tons to talk about. I'm 58 yrs old..

Mar 10Reply

abstractdreams @diryan0912 : I sleep in fits & starts due to pain. But...I'm often up in the middle of the night. I'm also a Sleep Tech & have some tips listed here about getting a better night's sleep & not self-sabotaging it.👍🏽Lmk if I can help there.

Mar 10Reply

devintagetc I too been dealing with since 2007. Not fun at all. 😢don't like man made meds. So I eat different now and it helps

Mar 15Reply

abstractdreams @tmdevore : I'm really sorry to hear when anyone tells me they're dealing with this Tina, but I'm glad you're here! I've had Fibro most of my life & Lupus for 35+ yrs. There's no magic pill anyway and there's a definite connection between certain foods & inflammation!👎🏽If you have any specific tips or things you found helpful, feel free to share!👍🏽💕

Mar 15Reply

abstractdreams @wenrella : I hope today's a good day hon.💕

Mar 22Reply

wenrella Well hello again Linda, I was just looking around, sharing the Posh❤️Love and found you again. As I started reading the comments I saw @lchouser speak about how strong I am. ( I am a fighter, but my strength is dwindling) but thanks Laura for believing in me buddy. I'm now using a product called dōTERRA essential oils to help fight the good fight more naturally.

Mar 22Reply

wenrella Cont: I started in December, I'm now just starting to feel the results. If anyone reading this wants more info. Go to @wenrella ( I hope this is ok Linda? I really believe this product will help us w/ chronic illnesses) miss your face 😘 I'd love to send you a free sample.

Mar 22Reply

abstractdreams @lchouser : What about me...😳? You don't miss me!? Lol!😆

Mar 23Reply

violetskys7 @abstractdreams I also suffer from this disease but try to remain positive. To all my fellow poshers who also suffer with this I wish you all sunny days, positive thoughts, and I will keep praying for a cure for everyone 💜💜💜

Mar 31Reply

roberstadt I have suffered with fibro since I was 18. I'm 35 now. It sucks. I hate the fibro fog the daily pills the pain killers and muscle relaxers and more. Ugh.

Apr 02Reply

abstractdreams @roberstadt : I'm sorry to hear that hon.💋I've had it (and Lupus) most of my life also, I'm 60 in Oct. After years on too many drugs that really didn't work for me, I'm doing pretty well on just Gabapentin, occasional massage, acupuncture, and serious stress relief! I'm down to 1-2 tramadol a day, that's it.👍🏽

Apr 02Reply

wenrelas_boutiq Now I remember how I know you! Du😜 @sassysuzzy is one of my closest PFF's. & you have fibromyalgia too! Did you change your picture? That will always mess with my head. Bahahagiggle 😆😆

Jun 13Reply

wenrella Hi PFF, I got inspired and want to start a prayer post. Can I add this? Love from @wenrella ⭕️❌✌🏽️

Jul 10Reply

abstractdreams @mimmy53055 : A list of symptoms may be part of who you are, but it does not define you! I have a laundry list as well, but I have never wanted to be "Linda Lupus." Illness is just a small part of me. I was disabled for 25+ years that I was married to the Lord of Darkness, once I divorced him, my health improved tremendously!👍🏽You need to take good care of you too while you're busy caring for everyone else.💕

Jul 25Reply

abstractdreams @mimmy53055 : Don't get me wrong, I'm not all unicorns & rainbows! I heard something once & I'm not sure if I posted it here, but I liked it. "You were given this life because you're strong enough to live it." Sometimes I wish that wasn't the case, it's a heavy load & I get tired (and way tired of hurting)!.😖

Jul 25Reply

wenrella Hi buddy, Thank You for praying for the sick sisters & leaving an update. I'm finally back on a more full time bases. I'm starting a new share group in my vintage closet. I think it would be a great distraction for you. I'll tag you in the post in my closet, check it out & sign up if you feel it's a good one. Love from @wenrella ⭕️❌✌🏽️

Jul 31Reply

wenrella Hi buddy, I'm writing here so I don't make comments on a "for sale item" and clutter it up. I started a new medication to help me sleep, but it's really weak & hasn't worked. I did get my SSD! But I guess it's a hurry up and wait kinda thing. I got the letter but don't know the amount I'll receive monthly or what kind of Dr.'s it covers for the Medicare part.

Aug 03Reply

wenrella Having the BEST dreams ever! Wish I could just sleep in an awesome dream and never wake up, that it was my real life and not the one where I sit in bed with my PJ's on all day. I'm going to try to go out to the pool today ( it's 4pm here ) so if I'm going to get some Vit. D I'd better get going. Miss your face 😘 wish you lived closer. Love from @wenrella ⭕️❌✌🏽️

Aug 03Reply

abstractdreams @wenrella : Vitamin D is a good thing!👍🏽The prob with sleep meds is they're only good for the short term, if they work at all.👎🏽You know about the sleep hormones, right? Melatonin (fall asleep) & GABA (stay asleep). For me personally, I prefer them, they're not drugs but supplements for what my brain isn't making enough of. Works most of the time, which was not my experience with drugs. That's my personal/professional opinion!

Aug 03Reply

butterflyrae It's so great to be on Posh, and have other people that have our disease and can relate, or just people who are understanding!!!

Aug 04Reply

butterflyrae @abstractdreams congrats on your host pic, gentle hugs , and good karma to you!!!

Aug 04Reply

abstractdreams @butterflyrae : Thx so much!! You're right, I find it helps a lot just to know we're not alone!👍🏽I hope today's a good day for you! ((hugs)) 💋

Aug 04Reply

lynda721 @daisymae1970 There are so many of us! It's terrible to have to realize how long we have suffered in silence before there was any awareness about this terrible disease. And when you get to a platform like Poshmark, you can see just how many people are suffering. @abstractdreams @wenrella @flutter_buys

Aug 17Reply

lynda721 @ccprice74

Aug 31Reply

ccprice74 YES, OUR VERY OWN DAY🍾🎉

Aug 31Reply

abstractdreams @ccprice74 : I wish we didn't need our own day...😕Feel free to stop by anytime to visit, vent or sympathize!👍🏽💕

Sep 01Reply

ccprice74 You're so right😥 I'm so happy that its recognized and no longer in our head😜lol...I continue to look to the future when sickness is no more☺️ Always know I'm here you as well, never knew I would meet so many beautiful amazing women on this site!!!! You're my POSH SISTER know😘🤗

Sep 01Reply

abstractdreams @ccprice74 : Right back @ you!💋I'm really glad that sweet Lynda💕 @lhaag721 sent you here!👍🏽I hope today's a good day for you both!

Sep 01Reply

ccprice74 May I add you to my list?

Sep 01Reply

abstractdreams @ccprice74 : Of course...what list?

Sep 01Reply

chelle4128 Oh this is so true, i deal with this pain everyday, plus ive had cancer 4xz, a broken neck, 14 surgeries, diabetes and now im getting ready for a major hernia surgery, ive been told i am a mess in there!!! LOL!! THIS WORLD IS A MESS we look at peoples outward not there inward! God is good and made us ALL. We are suppose to live eachother!!! I have a tattoo that reminds me, it says " Be Love!".....

Sep 09Reply

angelsapparel Hi😊 I have Fibro & CFS too. I'm glad there's more awareness now, but we still need a cure! I've been on disability since 2000, but actually began symptoms after a car accident in 1994. If you ever need to chat, feel free to tag me. Gentle Hugs💕

Oct 01Reply

lynda721 @flutter_buys @lucksterlw

Oct 27Reply

lucksterlw @lhaag721 Thanks Lynda!

Oct 27Reply

kellar100 @abstractdreams that's what I take 800mg 4x a day but I'm still in pain most days even with 30mg of Oxycodone 4x a day my kittys keep me pushing on even on my worst days I push on bc my kittys need me and I need them obviously for a reason to push on😻

Jan 14Reply

abstractdreams @kellar100 : I am sorry to hear this, but happy u found my listing! I just discovered a doctor I was unaware of; Peter Abaci, MD. I read an article in Drs. office about how pain & opiate pain meds : CHANGE our brains!! Often only making pain worse! Book is called Conquer Your Chronic Pain. I'm on the Pain Brain chapter.

Jan 14Reply

abstractdreams @chelle4128 @kaniacangel : I'm sorry I missed your comments.😳I've been in a dark place after my beloved Ebony Queen lost her fight with kidney failure/bladder cancer & I had to help her out of this life in July. I've only recently gotten to a place where I'm Poshing again. Let me know how you're doing & if I can help.💕

Jan 14Reply

kellar100 @abstractdreams this is true to I think I'll download that book bc I'm sick of the pain meds why thank those if they're not helping most of the time!! I'm glad I found you to maybe we can help each other out sometimes!!😊👍

Jan 14Reply

abstractdreams @kellar100 : That's the thing! I stayed married to an awful, dark, angry man for 25 years...I look back now & realize that I was WAY over medicated & still in debilitating amnts of pain for that whole time! I met a cancer doc who does pain mgmnt now & he helped me detox off Oxy in hospital, in 2003. By 2005, I realized it was time to take my life back & leave!👍🏽It's no picnic, but better on my own!

Jan 14Reply

abstractdreams And...I'm still ill, but it's like I'm cured from many of my symptoms!

Jan 14Reply

chelle4128 @abstractdreams hi sweety sooo sorry to hear about ur ebony queen! How hard i know losing our furbabies!! They touch our hearts in so many ways!!

Jan 14Reply

chelle4128 @abstractdreams i myself have been very down. On November 9th 2016 my momma died! Then we buried her on the 12th, her bday was Nov.17th then came Thanksgiving, my bday on Dec.15th and then of course Christmas! I hid under a rock! I cry almost daily! I miss her so much!! Never thought it would be this hard😢😢😢😪😪life can suck thats for sure! Im hangin in the best i can! God bless!❤

Jan 14Reply

abstractdreams @chelle4128 : I'm so sorry to hear about the loss of your mom, hon.💔It was a terrible (Insert curse word of your choice here) year altogether! Losing my little boo cannot possibly compare to that. How's your health thru it all?

Jan 15Reply

chelle4128 @abstractdreams its not good they are making me have bariatric surgery sooo at least thst will help with my diabetes

Jan 15Reply

makeminepink @abstractdreams - DO NOT LET YOUR PAIN DR. PUT YOU ON LYRICA... IT HAS CAUSED ME SO MANY PROBLEMS !!! 😣

Apr 09Reply

makeminepink @abstractdreams - LINDA 😔... IT BREAKS MY HEART TO LEARN OF SO MANY POSH SISTERS SUFFERING FROM THESE AUTO IMMUNE & ... INVISIBLE CONDITIONS... I HAVE MANY OF THEM & ASTHMA & ALLERGIES... ( 3 DAYS IS NOT ENOUGH TIME TO OPEN MY FINDS ... 😣 I JUST ACCEPT THINGS NOW & HOPE FOR THE BEST ... ( LYRICA HAS AFFECTED MY VISION... I HAVE TO HAVE PODIATRIST SURGERY DUE TO IT AS WELL ... BUT ... CHILDREN HAVE CANCER ... SO I TRY TO 🤐 IT. THANK YOU FOR BEING SO OPEN & CANDID !!! ) 😘 LISA 🙆🏻

Apr 09Reply

abstractdreams @makeminepink : There are many Fibro/Inflammatory disease sufferers here.😢I've been on Gabapentin (the drug Lyrica's derived from) for 20+ years & it was a Godsend! Everyone's disease is different & how we react to it & the meds is different for everyone as well. There are other options, I hope you find something that works for you.👍🏽💕

Apr 09Reply

makeminepink @abstractdreams - HEY LINDA ... I HAD TO SELL MY BUSINESS & STOP WORKING WHEN I HAD TWO SURGERIES THAT DIDN'T GO WELL ... & THEN I DEVELOPED ARTHRITIC SCOLIOSIS... I'VE HAD ALLERGIES & ASTHMA SINCE BIRTH ... I COULD RELATE TO THOSE THAT SAID THE BAROMETRIC PRESSURE CHANGING IS VERY PAINFUL... I MOVED FROM TEXAS & THE COLDER WEATHER & RAIN ☔️ HAS BEEN TOUGH. I SAW A LOT OF MEDS I HAVEN'T TRIED YET ... ( WE'LL SEE ...😉 ... !!! ) THANK YOU FOR HAVING THAT THERE ... ! SMILE ... LISA 🙋🏻

Apr 09Reply

mycrowsnest Ditto that! I'm a Fibromyalgia sufferer too! Ugh!

Apr 18Reply

angelbritton @mollyanne94 I just saw your post. I know what it's like to live with chronic nerve pain. That's all I'll say about my pain but God gives me the grace to get through each day and I'm praying and believing for healing. Jesus is the healer.

Apr 26Reply

abstractdreams @angelbritton And Amen. I was actually saying a little prayer to allow me a break from it so I can get to the post office.🙏🏽I hope today's a good day for you Britt.💕

Apr 26Reply

abstractdreams @tmvg Sorry I missed your comment Tina!😳Sometimes I Posh with only one eye open! And...then (if I'm lucky) I'm asleep! I hope today's a good day for you as well.💋

Apr 26Reply

mycrowsnest No worries! I'm busy Poshing at the moment too! Seems like a never ending story! And I'm pretty fussy about all my things! Clean! Ironed! All in plastic bins with dryer sheets! I make myself crazy sometimes! But today the weather is forgiving...so my Fibromyalgia is ok. Can't control the emotions sometimes but..I try and stay focused! 😉 Plus I work out like a mad man. Poshmark is my sanctum !

Apr 26Reply

angelbritton @abstractdreams I'll pray for both of us. Today is hard but yesterday was harder

Apr 26Reply

abstractdreams @angelbritton @tmvg : I try to explain to people that "sometimes a 'good day' is just not as bad as a bad day." Springtime surrounded by the Great Lakes is difficult! The barometer is way up & then way down with 30-40 degree temp changes. Pain!😖Yet, I always look forward to it after the long Winters!

Apr 26Reply

angelbritton @abstractdreams omg I thought I was the only one the weather affected! The rain & up & down temps of the spring have been really hard. 😳 but I also look foward to the nice weather after a long winter😁 I live in Chicago!

Apr 26Reply

abstractdreams @flutter_buys Thank you my sweet! After seeing your post I realized 2 things (remembered actually, but who's nitpicking😂). 1 I never used your BadAss pic after asking if I could & 2 I wanted to update/add more pics.👍🏽I'm on it!

Apr 28Reply

abstractdreams @makeminepink I'm sorry to hear that Lisa. My apologies for missing your comment. Spring in the Midwest is a difficult & especially painful time for me & when I log into Posh, I can't keep up. It doesn't help that I'm often trying to catch up last thing & end up Poshing with only one eye open & falling asleep before dropping my phone & giving myself a fat lip! I hope you're in a bit better health/spirits today.👍🏽💕

Apr 28Reply

flutter_buys @abstractdreams Hi Linda, well they look great! I like the snoopy one that's the truth!! 😏 Hoping you are feeling well too! I saw you have been busy getting newer listings on. That's great! Your Closet Looks Beautiful! 😃💕 Ttys xoxo Oh and Spring is definitely here now! 😜 80 degrees today! 👍🌸🌷

Apr 28Reply

abstractdreams @flutter_buys I'm trying, with marginal success! Spring surrounded by the Great Lakes is a barometric nightmare! 25-50 degree temp changes & up/down pressure changes! My bones are screaming @ the moment! I try to just plog thru, you know how it is...but it's not happening today!😖

Apr 28Reply

abstractdreams It's cooler today, 62-ish, but Spring has definatelly Sprung in MI too!👍🏽🌺🌱🌷

Apr 28Reply

abstractdreams Auto correct spelled definitely not ME!😳

Apr 28Reply

flutter_buys @abstractdreams Oh, sorry to hear that Linda! Yes that's a big jump! So you go through it longer by living there. Hope you feel better! 💜😘 Hang in there! It'll pass! Just a matter of when. 😔

Apr 28Reply

abstractdreams @flutter_buys True that!👍🏽Check out my new profile pic! Lol!

Apr 28Reply

hollylilly I am suffering with multiple auto immune diseases and CRPS. I will be getting my 1st sympathetic nerve block next Wednesday. I pray that it brings me much needed relief. Also I am praying for all of you amazing and very strong women. God Bless🖤 P.s. thank you @abstractdreams for posting ❤️

Apr 28Reply

flutter_buys @abstractdreams I love it! And it's the truth for sure! Sometimes people say to me "how can you stay in the house for such a long time?" It's not that I really have a choice!! Yeah sure I just WANT to! 😠 I hope you have a Better day today And that it'll pass soon! 💕💜🙏💕

Apr 29Reply

abstractdreams @flutter_buys Right? I hear the same, even from family...it's really sad, but my mom (who'll be 80 this Fall) recently got diagnosed with kidney disease. And you know what? Chronic illness that you can't see...got F'n REAL!😳

Apr 29Reply

flutter_buys @abstractdreams I'm sorry to hear that your mom was diagnosed with chronic kidney disease. My 84 year old mother has the same thing, for about 5 years now. Well at least and thankfully they are coming around now!! Its a shame it has to be this way tho! Have a great day Linda! 😘💕

Apr 29Reply

abstractdreams @flutter_buys Well, that's only partly true Karen (sorry about your mom too). She's the one who's sick now, so all that "suck it up, tough it out, get over it" bullshite I heard my entire life (my 1st misdiagnosis was when I was 15 - I'm 60!), went right out the window!! She completely turned into a self imposed invalid! She wants to learn zero about her illness, doesn't do a thing for herself anymore, stopped driving, etc.! I can't get over it!😒

Apr 29Reply

abstractdreams @flutter_buys You have a great day too!! Mine's starting out ('cept for the griping😂) better! Are you planning to go to PoshFest?? I am! Super excited!🎉👍🏽

Apr 29Reply

flutter_buys @abstractdreams Sounds like my mom! Ha! But she does have empathy. 😉💕 And that's so exciting to be going!!! I would love that! But no, not this year. I still need to make the meet and greets around here this year!! I never could make the last ones. Good for you Linda! Are you going with anyone or just meeting them there? 😃

Apr 29Reply

abstractdreams @mv777 👍🏼💋

May 15Reply

mechanical_bug Very cute Fibro posts!! I love it when Fibro can make me laugh or smile instead of cry or scream. I've had it 30 years, since my teens but took forever for the DX. I also have Chronic Fatigue Syndrome, Hypo Thyroid, ruptured discs in my back and neck and all my joints are still after 3 years, trying to recover from Chemo and Radiation I had after I was DX'd with Breast Cancer!!

May 20Reply

mechanical_bug It is a long, hard road. I thank God for my husband every day, he has been my rock and my "over protector", too! The pain is unbearable most of the time. Lyrics didn't do anything for me except mess up my vision 😞🤓 I'm on a whole lot of other stuff though.

May 20Reply

mechanical_bug Bless you all who are affected by one of these "Invisible Illnesses", that includes your caretakers, your children and all of your family and friends. It effects so many people, whether they actually feel the pain or not...they know. ❤❤❤❤. (((Gentle HUGS))) and lots of spoons to each of you.. Sorry for the length of this....I just enjoy sharing with others who really understand.

May 20Reply

abstractdreams @mechanical_bug : Thank you! Laughing instead of crying (or worse) is my m.o.! I have also been ill for 35+ years. Although Gabapentin (the drug Lyrica is made from) did help me! I happen to know the drug scientist & have been on it for 25+ years. Stop by any time. I thing sharing/venting helps. ((gentle hugs))/spoons to you as well.💋

May 20Reply

mechanical_bug @abstractdreams Thanks so much! Yes, venting definitely helps me and having that someone who understands just where you're coming from. Mines been about 35 years too. Gaba did work for me but doc just took me off vuz she upped my Welllbutrin (so) I think k I need to change back though. I'll def be around! ❤❤

May 21Reply

otiszoe04 @abstractdreams I have this. I know your pain all to well thank you for this. ❤️️💖💕❤️️💖💕❤️️💖💕❤️️💖💕✌️️✌️️✌️️✌️️✌️️✌️️✌️️✌️️✌️️😃😃😃😃😃😃Lisa

May 29Reply

abstractdreams @otiszoe04 : I'm always sorry to hear from someone new here, but I'm happy you found this. I think it helps to vent to peeps who totally get it!!👍🏼💋

May 29Reply

indiashea42 Thanks for sharing! I have fibro also as well as cervical spinal stenosis, r.a., chronic migraines, and pancytopenia. I was on such high doses of Dilaudid that they finally had to implant an internal pain pump. I hate all of it so much! Most days involve laying in bed as I live in southern Florida and it's always so humid. I feel like a 40 year old trapped in a 90 year olds body.

Jun 03Reply

lavenderfemchi Me too love the posting

Jun 04Reply

pleated_silk in school the other day one of my professors mentioned that some substantial portion of people diagnosed w fibromyalgia actually have been diagnosed/recategorized based on EMG results that show small fiber peripheral neuropathy. which is fascinating but also sad since medicine largely ignores fibromyalgia as malingering. i feel for you 💕stay tough 💪🏽

Sep 01Reply

datpiff99 💜💜💜💜💜💜

Nov 26Reply

trueloves_trove I loved finding this post! I was diagnosed with fibro a few weeks ago. I've been suffering from Thoracic Outlet Syndrom, Spinal Stenosis and more since 2012. It's resulting in many surgeries and more complications. I Posh to help with my medical bills.

Nov 27Reply

abstractdreams @trueloves_trove Ugh!😖While I love meeting up with Poshers that I have a lot in common with, it always 💔to meet them here! But I'm happy you found me! I was diagnosed many years ago Lupus/Fibro & there was very little info & I felt isolated & alone! That's why I posted this! There are lots of us! Struggling, suffering, but succeeding in our own ways! Lmk if you gave questions or need an ear or shoulder to lean on! ((gentle hugs)).💕

Nov 27Reply

twiggyglam @abstractdreams Thank you for this!! Perhaps one day I will be brave enough to share something similar in my closet. 😘

Nov 27Reply

cigi36 I have had it for ten years! Not fun! But I always think tomorrow will be better and it usually is! You gotta be a fighter!!!!!! 💜💜💜💜

Mar 29Reply

cheapshelley @abstractdreams I am afraid that I found this thread too late ? Last post from you Nov. 2017, it now is April 12, 2018 ?? What hope there is in these posts... What friendship ... What love ... it is so hard to keep friends who don't understand ... What a bright spot I thought I had found !!

Apr 12Reply

abstractdreams @cheapshelley I'm still here. But it's been another rough year for me, I'm afraid. I don't post here daily, just respond. I check in to Posh daily though... Are you okay?

Apr 14Reply

lovelyone7 @abstractdreams Thanks so much for bringing awareness. I've had it for about 10 years now. Sending hugs to all of my fellow Fibro Warriors!!! 😊Fighting the condition is only half the battle, on the other hand when I encounter judgment, it's the perfect opportunity to educate. Stay Strong, and be encouraged!♥️🦋😘

Sep 11Reply

heidizme I hear you..I have Lupus Fibro raynads menieres migraines to name a dew but that wont out us down together we fight till the end. I lost my sister at age 43...I will fight it happens no more!!

Nov 03Reply

atticchic @sassysuzzy I was diagnosed in 1989 as well. Back then there sure wasn't the attention that it has now!

Aug 03Reply

atticchic @abstractdreams love that you started a place where others with fibro are able to vent. I was diagnosed in 1989 at the age of 19. I'm a huge cat lover as well. Just wanted to say how wonderful I think it is! Hope you are having a lovely vacation!

Aug 03Reply

daffodildog23 Thank you , I’m sharing with bricks pushing on my shoulders, and the wicked dishrag all overs. 😂 So it was a boon to see you today. Best regards, Elizabeth

Feb 14Reply

cyndisales @riverflo19 so THATS why i’ve been doing this a LOT lately!!! (not bending my finger down!!) 🤷🏼‍♀️ i just took myself off that (Lyrica) approx 2 months ago & man am i a BEAST!! 😡 good to know 😆

Sep 20Reply

cyndisales @mechanical_bug. Hello!! i know your post is probably old, however i would love to chat about your pain & your current medication . i also had BC (2015) Now have Chemo induced Neuropathy! Chronic fatigue like no other!! ugh tried lots of things…. cant seem to get the “fatigue@ diagnosis from any dr 🤷🏼‍♀️- thanks for reading 🥰🌈

Sep 20Reply