IIH AWARENESS Show 💙 💚

Idiopathic intracranial hypertension (IIH) is a serious and chronically debilitating condition with potentially permanent effects on vision, cognition, and quality of life. The disease, caused by elevated pressure inside the skull, can mimic a brain tumor, and despite treatment, many patients continue to struggle with its long-term impacts. Permanent vision loss The most feared complication of IIH is irreversible blindness due to damage to the optic nerve. Papilledema: The heightened intracranial pressure causes swelling of the optic nerve, a condition called papilledema. If this swelling is severe or chronic, it can permanently harm the nerve. Progressive vision impairment: Vision loss often begins in the peripheral (side) vision before moving inward. In some cases, vision deteriorates slowly over time, while a rare "fulminant" form can cause rapid, severe visual loss within weeks. Surgical risk: Even surgical interventions carry the risk of complication. For instance, optic nerve sheath fenestration (ONSF), which aims to relieve pressure on the optic nerve, can cause permanent visual loss in a small percentage of patients. Persistent, disabling headaches For many IIH patients, the headaches are a constant and severe source of misery, even when the intracranial pressure has been stabilized. Come with me on my journey to spread awareness and help others find hope! Fun, games, raffles and more! I can't wait to see you there 💞